CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1501 - 1525 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58407 Blood collection tube volume value

Volume of blood collection tube

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54743 Specimen biologic source type

The type of biologic specimen collection source

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58936 Drug or substance current illicit or recreational use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C14222 Clinical stroke tissue-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using tissue status to distinguish between ischemic stroke and TIA

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58955 Antihypertensive agent stroke discharge prescribe other text

The free-text field related to 'Antihypertensive agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58944 Alcohol 30 day use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58740 Specimen collection grossly bloody indicator

Indicate whether the specimen collection was grossly bloody

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55329 Specimen storage barcode system used indicator

The indicator related to whether a specimen storage barcode system was used

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54695 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C07437 Patient Health Questionnaire (PHQ) - Concentration impairment score

Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C14401 Intra-arterial (IA) procedure initiated indicator

Indicates whether an Intra-arterial (IA) procedure was initiated for participant/ subject at this hospital

Supplemental-Highly Recommended Thrombolytic/Reperfusion Therapies Stroke Stroke
C15624 Pregnancy indicator

Indicates if the participant/subject is currently pregnant

Supplemental-Highly Recommended Medical History Stroke Stroke
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C58747 Specimen freezing date and time

Date (and time if applicable and known) when the specimen was frozen

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58913 Perinatal arterial ischemic stroke type

Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C11078 Delivery mode type

Type of delivery mode of the neonate

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C13907 Imaging B-mode finding result

Indicates B-mode finding

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58873 Blood collection method category

Indicate the method of blood collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken

Supplemental-Highly Recommended Behavioral History Stroke Stroke
Displaying 1501 - 1525 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.