CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Supplemental-Highly Recommended Modified Rankin Scale (mRS) Stroke Stroke
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C13190 Walking time duration

Time in seconds to complete the central 4 meters of a 6 meter line at a comfortable walking pace

Supplemental-Highly Recommended Walking Speed Stroke Stroke
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58949 Medication stroke discharge prescribe category

Class(es) of medications the participant/subject was prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58427 Biomarker specimen collected aliquot volume value

The volume per aliquot for pecimens collected from the participant/subject for biomarkers

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54748 Specimen baseline collection indicator

The indicator related to baseline specimen being collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58938 Drug or substance illicit or recreational use other text

The free-text field related to 'Drug or substance illicit or recreational use category', specifying other text

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58957 Anti diabetic agent stroke discharge prescribe other text

The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58724 Specimen hemolyzed indicator

Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55004 Specimen centrifugation temperature value

The value related to temperature in a centrifuge

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55340 Specimen selective inhibitor used indicator

Indicator of whether or not selective inhibitors were used on the sample

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C11062 Maternal delivery age value

Mother's age at the time she gave birth to the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54694 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale

Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session

Supplemental-Highly Recommended Vessel Imaging Angiography Stroke Stroke
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C13909 Imaging plaque surface type

Indicates plaque surface type

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C04814 Residence type

Type of residence where the participant/subject is currently living

Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C13917 Imaging end diastolic velocity measurement

Indicates end diastolic velocity (cm/sec)

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C15629 Postpartum indicator

Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy

Supplemental-Highly Recommended Medical History Stroke Stroke
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Stroke Stroke
C05408 Hospital admission date and time

Date (and time, if applicable and known) the participant/subject was admitted to the hospital

Supplemental-Highly Recommended Hospital Arrival/Admission Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.