CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 151 - 175 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C54916	Unruptured intracranial aneurysm observation reason	Reason for observation only of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C55358	Microdialysis cerebral analyte pyruvate measurement	The value of pyruvate in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C54768	Imaging aneurysm viscous dissipation measurement	Measurement of the mean viscous dissipation of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C58816	Frontal lobe function status	Assess frontal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C13208	Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale	Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
C07375	PTSD Checklist Civilian (PCL-C) - Memories indicator	Indicator of whether the subject experiences repeated, disturbing memories, thoughts, or images of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C54776	Imaging aneurysm inflow mean rate	Rate of mean inflow to the aneurysm, as determined by imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C14517	Device manufacturer name	The company responsible for development of the device	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
C07383	PTSD Checklist Civilian (PCL-C) - Loss interest indicator	Indicator of whether the subject experiences loss of interest in activities that you used to enjoy, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C58900	Imaging aneurysm oscillatory shear stress mean value unit of measure	Unit of measure of the value of the mean oscillatory shear stress of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C52709	Menopause begin age value	The age at which menopause began for the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Exploratory	Death	False	Stroke	Stroke
C58932	Menopause treatment type other text	The free-text field related to 'Menopause treatment type', specifying other text	Exploratory	Medical History	False	Stroke	Stroke
C59000	Medication L-asparaginase current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C52619	Medical history atrial fibrillation other cause indicator	The indicator related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
C07390	PTSD Checklist Civilian (PCL-C) - Super alert indicator	Indicator of whether the subject experiences being "super-alert" or watchful or on guard, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Demographics	False	Stroke	Stroke
C14539	Cardiac output measurement	The measurement of volume of blood pumped by the heart per minute. The recommended unit for recording cardiac output is liters per minute (LPM)	Supplemental	Vital Signs	False	Stroke	Stroke
C14215	Diagnosis stroke risk factor new indicator	Were there any new diagnoses (i.e., diagnosed for the first time) related to stroke risk factors during the hospital stay?	Supplemental	Hospital Discharge	False	Stroke	Stroke
C54278	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
C18412	Glasgow Outcome Scale Extended (GOS-E) - Assistance daily need indicator	Indicator if the participant needs another person at home essentially every day for some activities of daily living as part of Glasgow Outcome Scale Extended (GOS-E)	Supplemental	Glasgow Outcome Scale Extended (GOSE)	True	Stroke	Stroke
C12858	Cardiac MRI other cardiac anatomy evaluate name	Name of other cardiac anatomy that was evaluated by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
C12910	Echocardiogram right atrial pressure measurement	Right atrial pressure measured by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke

Displaying 151 - 175 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.