CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1451 - 1475 of 1547

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C58745	C58745	Specimen cooler than room temperature indicator	Indicate whether the specimen was kept cooler than room temperature	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C11079	C11079	Neonate delivery route type	Route of delivery of the neonate	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1173-C58871	C58871	Imaging signal indicator	Indicates signal on the carotid ultrasound	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1165-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1161-C01000	C01000	Glasgow Coma Scale (GCS) - eye response scale	Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
F1197-C13191	C13191	Walking speed value	Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke
F1169-C58427	C58427	Biomarker specimen collected aliquot volume value	The volume per aliquot for pecimens collected from the participant/subject for biomarkers	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54748	C54748	Specimen baseline collection indicator	The indicator related to baseline specimen being collected	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1154-C58938	C58938	Drug or substance illicit or recreational use other text	The free-text field related to 'Drug or substance illicit or recreational use category', specifying other text	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1178-C58954	C58954	Antihypertensive agent stroke discharge prescribe type	Type(s) of antihypertensive agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1169-C58724	C58724	Specimen hemolyzed indicator	Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55340	C55340	Specimen selective inhibitor used indicator	Indicator of whether or not selective inhibitors were used on the sample	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C11062	C11062	Maternal delivery age value	Mother's age at the time she gave birth to the participant/subject	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1154-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F2836-C54694	C54694	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale	Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1158-C04814	C04814	Residence type	Type of residence where the participant/subject is currently living	Supplemental-Highly Recommended	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2032-C07436	C07436	Patient Health Questionnaire (PHQ) - Feeling failure score	Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1165-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1152-C15629	C15629	Postpartum indicator	Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy	Supplemental-Highly Recommended	Medical History	False	Stroke	Stroke
F1159-C05408	C05408	Hospital admission date and time	Date (and time, if applicable and known) the participant/subject was admitted to the hospital	Supplemental-Highly Recommended	Hospital Arrival/Admission	False	Stroke	Stroke
F1158-C01016	C01016	Glasgow Coma Scale (GCS) - total score	Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)	Supplemental-Highly Recommended	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2168-C20526	C20526	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category	Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F1173-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1169-C58746	C58746	Specimen centrifugation date and time	Date (and time if applicable and known) when the specimen was centrifuged	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke

Displaying 1451 - 1475 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.