CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1376 - 1400 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C14257 Childhood stroke type

Indicates the type of clinical stroke suffered by the child

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C13190 Walking time duration

Time in seconds to complete the central 4 meters of a 6 meter line at a comfortable walking pace

Supplemental-Highly Recommended Walking Speed Stroke Stroke
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C14627 Stroke initial residence or discharge destination type

Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay

Supplemental-Highly Recommended Hospital Discharge Stroke Stroke
C13917 Imaging end diastolic velocity measurement

Indicates end diastolic velocity (cm/sec)

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Stroke Stroke
C58742 Shipping conditions type

Indicate the specimen shipping conditions

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C11081 Delivery caesarean timing status

Status of the caesarean delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C01541 Weight measurement

Measurement of participant's weight

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C58820 Pregnancy or delivery risk factor status

The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session

Supplemental-Highly Recommended Vessel Imaging Angiography Stroke Stroke
C13909 Imaging plaque surface type

Indicates plaque surface type

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C58718 Tobacco last consumed date and time

Date (and time, if applicable and known) the participant/subject last used tobacco

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58950 Anticoagulant agent stroke discharge prescribe type

Type(s) of anticoagulant agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54694 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale

Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C14258 Perinatal stroke type

Indicates the type of clinical stroke suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
Displaying 1376 - 1400 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.