CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C13855	C13855	Abscess anatomic site	The free-text field to specify the location of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1153-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Stroke	Stroke
F1162-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1165-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1178-C58958	C58958	Lipid lower agent stroke discharge prescribe type	Type(s) of lipid lowering agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1155-C11081	C11081	Delivery caesarean timing status	Status of the caesarean delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2168-C20527	C20527	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category	Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F1155-C58820	C58820	Pregnancy or delivery risk factor status	The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1169-C58751	C58751	Specimen expiration date	Date when the specimen will expire, if applicable	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2032-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1174-C13879	C13879	Imaging modality vessel imaging angiography type	Indicates imaging modality for vessel imaging angiography	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14219	C14219	Clinical stroke time-based definition indicator	Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1178-C58952	C58952	Antiplatelet agent stroke discharge prescribe type	Type(s) of antiplatelet agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1155-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1169-C54751	C54751	Cerebrospinal fluid collection anatomic site	The anatomic site related to collection of cerebrospinal fluid (CSF)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58737	C58737	Blood collection tube number	Enter the number of collection tubes used	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55323	C55323	Specimen normal control collected indicator	Indicator of whether or not normal or control samples were collected	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2836-C54688	C54688	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale	Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C58680	C58680	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale	Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1161-C01002	C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
F1178-C14631	C14631	Antiplatelet agent in hospital indicator	Whether the participant/subject received antiplatelet agents during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1169-C55747	C55747	Specimen insulate shipment box indicator	The indicator related to whether the specimen insulated in a shipment box	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C00723	C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1169-C01712	C01712	Lab specimen type	Type of specimen collected for the laboratory test	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1178-C58959	C58959	Lipid lower agent stroke discharge prescribe other text	The free-text field related to 'Lipid lower agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.