CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C13766	C13766	Imaging brain acute infarct anatomic site	Indicates the anatomic brain region of the acute infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C17488	C17488	Psychiatric history psychotic diagnosis type	Type of psychotic disorder the participant/subject has been diagnosed with, if any	Supplemental	Medical History	False	Stroke	Stroke
F1157-C11085	C11085	Developmental and academic history indicator	Whether the participant/subject has a history of the specific aspect of the pre-morbid developmental status or academic function	Supplemental	Prior Functional Status	False	Stroke	Stroke
F2838-C18693	C18693	Imaging contrast agent method other text	The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C18888	C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10725	C10725	Echocardiogram left ventricle PWTd measurement	Left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C13954	C13954	Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up date and time	The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Stroke	Stroke
F2826-C54886	C54886	Subarachnoid hemorrhage ictus elapsed hour count	Count of 60-minute intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1171-C13827	C13827	Hematoma chronic count	Indicates number of chronic hematomas if present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58800	C58800	Stroke surgical operative preventive treatment indicator	Indicates whether or not the participant/ subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54060	C54060	D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Scaled Score	Scaled score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1165-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13933	C13933	Intima media thickness (IMT) mean far-wall measurement	Indicates mean intima media thickness (IMT) far-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58969	C58969	Medication cholesterol reduce control past week other text	The free-text field related to 'Medication cholesterol reduce control past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1159-C14196	C14196	Hospital location patient first received care type	Area of the hospital the patient first evaluated	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13775	C13775	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) territory segment type	The type of middle cerebral artery (MCA) territory segment assessed for Alberta Stroke Program Early CT score (ASPECTS) score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13521	C13521	Gait walk unassisted result	Ability of the participant/subject to walk multiple steps unassisted	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1172-C18890	C18890	Imaging magnetic resonance based identification core volume other text	The free-text field related to 'Imaging magnetic resonance based identification core volume type' specifying other text. Indicates magnetic resonance based identification of core volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1152-C52598	C52598	Medical history ischemic stroke recency rate	The element related to the recency of ischemic strokes the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1151-C00214	C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Stroke	Stroke
F1949-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54732	C54732	Parent artery proximal aneurysm diameter measurement	Diameter of the parent artery proximal to the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10735	C10735	Echocardiogram left ventricular hypertrophy status	Status of whether the echocardiogram shows that the participant/subject has left ventricular hypertrophy	Supplemental	Echocardiogram II	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.