CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1173-C13923	C13923	Imaging power doppler result	Indicates power doppler result	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C58811	C58811	Pre-hospital severity scale total score	The total score of the severity scale, if completed	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13763	C13763	Imaging circulations involved anatomic site	Indicates circulations involved	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C58831	C58831	Stroke initial residence or discharge destination other text	The free-text field related to 'Stroke initial residence or discharge destination type' specifying other text. Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1157-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1150-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Demographics	False	Stroke	Stroke
F2838-C14051	C14051	High intensity transient signal hits end time	Indicates high intensity transient signal hits end time	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C13883	C13883	Computer tomography (CT) angiography type	The type of computer tomography angiography being performed	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2370-C53951	C53951	Stroop Color and Word Test (SCW) - Color word T score	Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2838-C13951	C13951	Imaging spectrum end diastolic ratio value	Indicates spectrum end diastolic ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2826-C54883	C54883	Aneurysm treated count	Count of aneurysms treated	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1171-C13825	C13825	Spot sign total score	The total score for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58798	C58798	Increase intracranial pressure medical therapy type	Type of medical therapy received by the participant/subject for the treatment of increased intracranial pressure	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54057	C54057	D-KEFS Color-Word Interference Test (CWIT) -Condition 3 Raw Score	Raw score of inhibition, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1165-C14541	C14541	Systemic vascular resistance measurement	A measurement of the arteriolar constriction throughout the body	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13931	C13931	Intima media thickness (IMT) findings artery type	Indicates intima media thickness (IMT) artery used for mean and max measurements	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58967	C58967	Medication cholesterol reduce control current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken cholesterol-reducing/ controlling medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1159-C14194	C14194	Hospital not admitted but transferred to another acute care hospital indicator	Whether a patient presented to the Emergency Department of the study hospital and was transferred to an outside hospital. Was patient evaluated in the ED for acute Stroke or TIA and subsequently transferred to another acute care hospital rather than being admitted to your hospital?	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13773	C13773	Imaging lesion relative threshold amount text	Indicates acute lesion threshold relative amount	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1172-C14018	C14018	Imaging perfusion computed tomography based identification core defect volume measurement	Indicates perfusion CT (PCT) based identification of core defect volume	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1151-C00206	C00206	Family income supported persons count	Count of all people, including the participant/subject, who are supported by the household gross annual income reported	Supplemental	Social Status	False	Stroke	Stroke
F2838-C58868	C58868	Imaging transient ischemic attack type	Indicates type of transient ischemic attack	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.