CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2827-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10731	C10731	Echocardiogram right atrial enlargement status	Status of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1174-C02485	C02485	Traumatic aneurysm anatomic site	Anatomic site of the traumatic aneurysm	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2838-C13961	C13961	High intensity transient signal hits present indicator	Indicates presence of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13823	C13823	Spot sign maximum axial dimension measurement	The maximum axial dimention related to "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2826-C54891	C54891	Medication antithrombotic used procedure type	Type of antithrombotic medication used during surgical or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58792	C58792	Carotid revascularization procedure type	Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1165-C14539	C14539	Cardiac output measurement	The measurement of volume of blood pumped by the heart per minute. The recommended unit for recording cardiac output is liters per minute (LPM)	Supplemental	Vital Signs	False	Stroke	Stroke
F2008-C54065	C54065	D-KEFS Color-Word Interference Test (CWIT) -Contrast Scaled Score	Scaled score converted from scaled score difference, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C13929	C13929	Intima media thickness (IMT) edge detection algorithm indicator	Indicates intima media thickness (IMT) edge detection algorithm use	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58961	C58961	Medication antiplatelet current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken antiplatelet medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13770	C13770	Imaging acute lesion count	Indicates acute lesion count	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14266	C14266	Sophia vessel sub type	Sophia classification of stroke subtype by vessel affected	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1154-C00719	C00719	Tobacco product used type	Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Stroke	Stroke
F1162-C13833	C13833	Graeb intraventricular hemorrhage (IVH) scale - third ventricle score	Indicates Graeb IVH Scale - Third ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C54082	C54082	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total error count	The total number of errors made by the participant during their completion of Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1152-C52702	C52702	Connective tissue disease other type text	The free-text field related to other type of connective tissue disease	Supplemental	Medical History	False	Stroke	Stroke
F2827-C54738	C54738	Aneurysm thrombus indicator	Indicator for the presence of evidence of thrombus	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10744	C10744	Echocardiogram left ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14008	C14008	Imaging window quality category	Indicates window quality category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Stroke	Stroke
F2826-C54899	C54899	Blood transfusion surgery procedure indicator	Indicator of whether blood transfusion was performed during surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58800	C58800	Stroke surgical operative preventive treatment indicator	Indicates whether or not the participant/ subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1167-C01700	C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1206-C58969	C58969	Medication cholesterol reduce control past week other text	The free-text field related to 'Medication cholesterol reduce control past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.