CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1182-C21667	C21667	Therapy rehabilitation ICD 10 CM code	ICD-10-CM code that describes the therapy or rehabilitation received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C02493	C02493	Venous sinus injury morphology type	Morphology of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14238	C14238	Intraventricular hemorrhage presumed cause type	Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13829	C13829	Microbleed anatomic site	Describes microbleed location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1153-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Family History	False	Stroke	Stroke
F2008-C54059	C54059	D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Raw Score	Raw score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F2380-C12901	C12901	Echocardiogram right ventricle end systolic volume measurement	Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1167-C01700	C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1206-C58969	C58969	Medication cholesterol reduce control past week other text	The free-text field related to 'Medication cholesterol reduce control past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13788	C13788	Imaging chronic infarct anatomic site	Anatomic site of the chronic infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14406	C14406	Intra-arterial (IA) catheter-based reperfusion other hospital indicator	Indicates whether intra-arterial (IA) catheter-based reperfusion was initiated for the participant/subject at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1164-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C52602	C52602	Medical history migraine aura indicator	The indicator related to the participant/subject having migraine(s) with aura	Supplemental	Medical History	False	Stroke	Stroke
F1158-C14202	C14202	Emergency Medical Services (EMS) dispatch priority type	For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1162-C58910	C58910	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade	The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2380-C10733	C10733	Echocardiogram right ventricular systolic dysfunction status	Status of right ventricular systolic dysfunction on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2828-C54277	C54277	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus language difference score	Difference score calculated as a subtraction of Language index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1181-C58846	C58846	Discharge origin location other text	The free-text field related to 'Discharge origin location type', specifying other text	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54067	C54067	Delis-Kaplan Executive Function System (DKEFS) - Error analysis optional type	Optional measures for error analysis, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F2380-C12909	C12909	Echocardiogram right ventricular systolic pressure measurement	Measurement of right ventricular systolic pressure estimate obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1173-C58870	C58870	Imaging plaque thickness unit of measure	The unit of measure for "Imaging plaque thickness measurement"	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58977	C58977	Medication diuretic past week other text	The free-text field related to 'Medication diuretic past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13797	C13797	Modified Scheltens scale occipital caps score	Indicates Modified Scheltens scale - Occipital caps score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14399	C14399	IV tPA not started reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1165-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.