CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C58827	C58827	Hyperdense venous sinus or cortical vein specify text	Specify in text the hyperdense observations that were made	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C18913	C18913	Adjunctive treatment other text	The free-text field related to 'Adjunctive treatment type' specifying other text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C02492	C02492	Venous sinus injury anatomic site	Anatomic site of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14237	C14237	Intracerebral hemorrhage presumed cause type	Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1153-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Stroke	Stroke
F2834-C14280	C14280	Comfort care earliest documentation timepoint type	Timepoint of the earliest documentation of comfort measures only	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1056-C12854	C12854	Cardiac MRI gadolinium contrast use indicator	Indicator of whether gadolinium-based contrast was used for the cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54267	C54267	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Percentile group type	Percentile group type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1206-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C12899	C12899	Echocardiogram right ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04512	C04512	ECG QTc interval	Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10738	C10738	Echocardiogram peak systolic pressure gradient measurement	Peak systolic pressure gradient measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1171-C58837	C58837	Epidural hematoma thickness measurement	Measured thickness in mm of the epidural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58878	C58878	Therapy or rehabilitation duration	Duration in weeks of therapy or rehabilitation services the participant/subject received	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C55343	C55343	Specimen hazardous triple packaged ship indicator	The indicator related to whether the hazardous specimen was triple packaged for shipping	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54757	C54757	Imaging aneurysm dome size value	Value of the aneurysm dome size determined by imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14250	C14250	Subarachnoid hemorrhage Sylvian fissure lateral part score	SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13836	C13836	Fisher grade	Indicates Fisher grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1167-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1153-C58948	C58948	Family history coronary artery disease (CAD) youngest age unknown status	Status indicating the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack, if there is a family history of coronary artery disease (CAD)	Supplemental	Family History	False	Stroke	Stroke
F1160-C14182	C14182	Stroke symptom duration range	The range of approximate stroke symptom duration. This is especially important if the diagnosis is Transient Ischemic Attack (TIA)	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1056-C17928	C17928	Cardiac MRI myocardial scar anatomic site	Anatomic site where myocardial scar was/was not detected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54275	C54275	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1206-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C12907	C12907	Echocardiogram right ventricle non-compaction status	Status of non-compaction in the right ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.