CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1251 - 1275 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54262 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value

Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C13876 Imaging perfusion computed tomography based identification perfusion defect volume measurement

Indicates PCT based identification of perfusion defect volume

 Supplemental Perfusion and Penumbral Imaging False Stroke Stroke
C14055 Stroke Adjudication Worksheet - neuroimaging MRI stroke finding indicator

Whether the MRI was positive for this stroke event

 Supplemental Stroke Adjudication Form False Stroke Stroke
C12894 Echocardiogram right ventricular internal dimension end diastole measurement

Measurement of right ventricular end - diastolic internal dimension (RVIDd) obtained by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C04503 ECG heart rate

Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)

 Supplemental Electrocardiogram (ECG) False Stroke Stroke
C10733 Echocardiogram right ventricular systolic dysfunction status

Status of right ventricular systolic dysfunction on the echocardiogram

 Supplemental Echocardiogram False Stroke Stroke
C58896 Clinical stroke tissue based Intracerebral hemorrhage laterality type

Indicate the laterality of the intracerebral hemorrhage

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58826 Hyperdense artery specify text

Specify in text the hyperdense observations that were made

 Supplemental Parenchymal Imaging False Stroke Stroke
C22608 Total rehabilitation session count

The total number of rehabilitation sessions the participant/subject has been part of

 Supplemental Rehabilitation Therapies False Stroke Stroke
C02491 Venous sinus injury status

Status of compression (>50%), occlusion, or laceration of a dural venous sinus due to trauma

 Supplemental Vessel Imaging Angiography False Stroke Stroke
C14236 Oxfordshire Community Stroke Project (OCSP) - subtype category

Oxfordshire Community Stroke Project (OCSP) Subtype Classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

 Supplemental Family History False Stroke Stroke
C14283 Do not resuscitate or intubate (DNR or DNI) earliest documentation timepoint type

Timepoint of earliest documentation of DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization

 Supplemental Palliative/Comfort Care and End of Life Issues False Stroke Stroke
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Stroke Stroke
C54270 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Statistical significance value

Statistical significance, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C12902 Echocardiogram left ventricle end systolic volume index measurement

Measurement calculated from end systolic volume over body surface area for the left ventricle obtained by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C04511 ECG QT interval

Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded

 Supplemental Electrocardiogram (ECG) False Stroke Stroke
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

 Supplemental Echocardiogram False Stroke Stroke
C10678 Employment full-time status

Status of participant/subject's current full-time employment

 Supplemental Social Status False Stroke Stroke
C21117 Subject name

Name of subject/participant

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
C54733 Parent artery distal aneurysm diameter measurement

Diameter of the parent artery distal to the aneurysm being described

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
C10740 Echocardiogram left ventricle ejection fraction measurement

Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C14003 Imaging brain death present indicator

Indicates presence of brain death

 Supplemental Vessel Imaging Transcranial False Stroke Stroke
C07092 Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator

Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Stroke Stroke
Displaying 1251 - 1275 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.