CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 126 - 150 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58935	Facial segmental hemangioma PHACE syndrome indicator	The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome	Exploratory	Medical History	False	Stroke	Stroke
C18678	Family history medical condition other text	The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken	Exploratory	Family History	False	Stroke	Stroke
C52603	Medical history migraine active last year indicator	The indicator related to the participant/subject having had an active migraine within the last year	Exploratory	Medical History	False	Stroke	Stroke
C55347	Microdialysis cerebral probe membrane length measurement	The field to specify the membrane length for probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C54762	Imaging aneurysm occlusion percent value	Value of percentage of aneurysm that is occluded, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C52622	Medical history cardiac catheterization recency rate	The element related to the recency of cardiac catheterization the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
C54918	Unruptured intracranial aneurysm management compliance indicator	Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C13880	Digital Subtraction Angiography (DSA) site of access anatomic site	The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
C07426	PTSD Checklist Civilian (PCL-C) - Total score	A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C13774	Imaging one third middle cerebral artery territory involved indicator	Indicates if 1/3 middle cerebral artery (MCA) territory is involved	Exploratory	Parenchymal Imaging	False	Stroke	Stroke
C13519	Lower limb tone findings result	Assess tone of lower limbs on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C54904	Vessel occlude temporary surgery procedure count	Count of blood vessels that were temporarily occluded during surgery or other procedure	Exploratory	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58817	Parietal lobe function status	Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C54919	Unruptured intracranial aneurysm management noncompliance text	The free-text field related to 'Unruptured intracranial aneurysm management compliance indicator' specifying noncompliance	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C54995	Potency enhancing drug current former use duration	Duration in months for which the subject/participant took or has taken the specified potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C54771	Imaging aneurysm wall shear stress maximum measurement	Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
C07378	PTSD Checklist Civilian (PCL-C) - Very Upset indicator	Indicator of whether the subject experiences feeling very upset when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C58928	Medical history carotid endarterectomy recent date	Date of most recent carotid endarterectomy performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
C07386	PTSD Checklist Civilian (PCL-C) - Future indicator	Indicator of whether the subject experiences feeling as if your future will somehow be cut short, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C17475	Cardiovascular history cardiac surgery type	Type of cardiac surgery or mechanical intervention the participant/subject underwent	Exploratory	Medical History	False	Stroke	Stroke
C22679	Medical history first depressive episode diagnosis age value	Value of a participant's/subject's age when first depressive episode was diagnosed	Exploratory	Medical History	False	Stroke	Stroke
C52569	Brain aneurysm family member relationship text	Specify the relationship(s) that a family member with brain aneurysm(s) has with the subject/participant	Exploratory	Family History	False	Stroke	Stroke
C55348	Device model number	The model number for the device used	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke

Displaying 126 - 150 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.