CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1174-C02492	C02492	Venous sinus injury anatomic site	Anatomic site of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14237	C14237	Intracerebral hemorrhage presumed cause type	Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1153-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Stroke	Stroke
F2834-C18912	C18912	Comfort care measure other text	The free-text field related to 'Comfort care measure type' specifying other text. Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1056-C12859	C12859	Cardiac MRI other cardiac anatomy structure result status	Status of the result of evaluation of the structure of the selected other cardiac anatomy as observed on the cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54271	C54271	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Standardization sample difference frequency	Frequency of difference in standardization sample, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form B	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1206-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C12903	C12903	Echocardiogram right ventricle end systolic volume index measurement	Measurement calculated from end systolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04512	C04512	ECG QTc interval	Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10742	C10742	Echocardiogram mitral valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1171-C58837	C58837	Epidural hematoma thickness measurement	Measured thickness in mm of the epidural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58883	C58883	Adjunctive treatment drool surgical procedure injection specify text	The free-text field related to 'Adjunctive treatment type' specifying the type of surgical procedure or injections for drooling text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C55343	C55343	Specimen hazardous triple packaged ship indicator	The indicator related to whether the hazardous specimen was triple packaged for shipping	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54757	C54757	Imaging aneurysm dome size value	Value of the aneurysm dome size determined by imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14250	C14250	Subarachnoid hemorrhage Sylvian fissure lateral part score	SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13836	C13836	Fisher grade	Indicates Fisher grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1167-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1153-C58948	C58948	Family history coronary artery disease (CAD) youngest age unknown status	Status indicating the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack, if there is a family history of coronary artery disease (CAD)	Supplemental	Family History	False	Stroke	Stroke
F1160-C14182	C14182	Stroke symptom duration range	The range of approximate stroke symptom duration. This is especially important if the diagnosis is Transient Ischemic Attack (TIA)	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F2822-C04800	C04800	Death cause text	Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate	Supplemental	Death	False	Stroke	Stroke
F2828-C54279	C54279	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1206-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C12911	C12911	Echocardiogram right ventricle systolic pressure estimation type	Type of technique used to estimate the right ventricular systolic pressure	Supplemental	Echocardiogram II	False	Stroke	Stroke
F0936-C10750	C10750	Echocardiogram tissue doppler septum S prime velocity measurement	Tissue doppler septum S' velocity measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1199-C13231	C13231	King's Outcome Scale for Childhood Head Injury (KOSCHI) - prognosis category	The category that best describes the child's prognosis by the King's Outcome Scale for Childhood Head Injury (KOSCHI), which is a specific pediatric adaptation of the original adult Glasgow Outcome Scale (GOS)	Supplemental	King's Outcome Scale for Childhood Head Injury (KOSCHI)	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.