CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2824-C58731	C58731	Occupation primary after event status	The status indicating the participant's/subject's primary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
F1056-C12846	C12846	Cardiac MRI left ventricle posterior wall thickness measurement	Measurement of the thickness of the posterior wall of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54260	C54260	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type	Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1172-C13874	C13874	Imaging perfusion computed tomography based identification perfusion defect threshold type	Indicates PCT based identification of perfusion defect threshold type used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C14053	C14053	Stroke Adjudication Worksheet - neuroimaging single CT stroke finding indicator	Whether the single brain CT scan was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12892	C12892	Echocardiogram left ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the left ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1169-C58723	C58723	Blood collection method type other text	The free-text field related to 'Blood collection method type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1177-C04501	C04501	ECG assessment date and time	Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10731	C10731	Echocardiogram right atrial enlargement status	Status of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58894	C58894	Clinical stroke time based Intracerebral hemorrhage laterality type	Indicate the laterality of the intracerebral hemorrhage	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C21667	C21667	Therapy rehabilitation ICD 10 CM code	ICD-10-CM code that describes the therapy or rehabilitation received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1154-C58945	C58945	Regular moderate intense aerobic exercise physical activity indicator	Indicator related to whether or not the participant/subject participates in regular aerobic exercise (moderate intensity physical activity). Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously	Supplemental	Behavioral History	False	Stroke	Stroke
F1162-C14234	C14234	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - diagnostic evidence level type	Levels of diagnostic evidence for the ASCO Grades	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1152-C59009	C59009	Pregnancy current status	Status of the participant/subject's pregnancy currently	Supplemental	Medical History	False	Stroke	Stroke
F2834-C14281	C14281	Comfort care measure type	Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1056-C12855	C12855	Cardiac MRI myocardial scar result status	Status of the result of evaluation of the cardiac magnetic resonance imaging (MRI) for my ocardial scarring on the selected ventricle	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54268	C54268	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score	Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1206-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C12900	C12900	Echocardiogram left ventricle end systolic volume measurement	Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04509	C04509	ECG PR interval	Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10739	C10739	Echocardiogram mean pressure gradient measurement	Mean pressure gradient measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58907	C58907	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - small vessel grade	The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of small-vessel disease (S)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58834	C58834	Leukoaraiosis sequence specify text	Specify the leukoaraiosis sequence employed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.