CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1542
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13519 Lower limb tone findings result

Assess tone of lower limbs on the affected side using the Orgogozo Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C58817 Parietal lobe function status

Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)

 Exploratory Physical/Neurological Exam False Stroke Stroke
C54740 Aneurysm followup shape type

Type of shape of the aneurysm at follow-up

 Exploratory Aneurysm Location and Dimensions False Stroke Stroke
C58928 Medical history carotid endarterectomy recent date

Date of most recent carotid endarterectomy performed on the participant/subject

 Exploratory Medical History False Stroke Stroke
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Exploratory Demographics False Stroke Stroke
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) True Stroke Stroke
C07375 PTSD Checklist Civilian (PCL-C) - Memories indicator

Indicator of whether the subject experiences repeated, disturbing memories, thoughts, or images of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C58783 Race expanded paternal category

Category of race(s) or region(s) the participant/subject's father most closely identifies with

 Exploratory Demographics False Stroke Stroke
C07383 PTSD Checklist Civilian (PCL-C) - Loss interest indicator

Indicator of whether the subject experiences loss of interest in activities that you used to enjoy, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C52569 Brain aneurysm family member relationship text

Specify the relationship(s) that a family member with brain aneurysm(s) has with the subject/participant

 Exploratory Family History False Stroke Stroke
C07391 PTSD Checklist Civilian (PCL-C) - Jumpy indicator

Indicator of whether the subject experiences feeling jumpy or easily startled, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C55348 Device model number

The model number for the device used

 Exploratory Biospecimen Collection and Processing False Stroke Stroke
C52560 Occupation paid type

Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO)

 Exploratory Social Status False Stroke Stroke
C55361 Microdialysis cerebral novel target analyte indicator

The indicator related to whether there were any novel target analytes in the cerebral microdialysis

 Exploratory Biospecimen Collection and Processing False Stroke Stroke
C54771 Imaging aneurysm wall shear stress maximum measurement

Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging

 Exploratory Vessel Imaging Angiography False Stroke Stroke
C54993 Cocaine exposure age end value

Age in years at which the subject/participant's exposure to cocaine ended

 Exploratory Prior and Concomitant Medications False Stroke Stroke
C54916 Unruptured intracranial aneurysm observation reason

Reason for observation only of unruptured intracranial aneurysm (UIA)

 Exploratory Unruptured Intracranial Aneurysm Management False Stroke Stroke
C58929 Medical history carotid artery stenting recent date

Date of most recent carotid artery stenting performed on the participant/subject

 Exploratory Medical History False Stroke Stroke
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

 Exploratory Demographics False Stroke Stroke
C13209 Generalized Anxiety Disorder (GAD-7) - restless scale

Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) True Stroke Stroke
C07376 PTSD Checklist Civilian (PCL-C) - Dream indicator

Indicator of whether the subject experiences repeated, disturbing dreams of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C05134 Therapy rehabilitation start date time

Date (and time, if applicable and known) on which the therapy or rehabilitation started

 Exploratory Rehabilitation Therapies False Stroke Stroke
C07384 PTSD Checklist Civilian (PCL-C) - Distant indicator

Indicator of whether the subject experiences feeling distant or cut off from other people, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C52570 Subarachnoid hemorrhage family member relationship text

Specify the relationship(s) that a family member with subarachnoid hemorrhage has with the subject/participant

 Exploratory Family History False Stroke Stroke
C07426 PTSD Checklist Civilian (PCL-C) - Total score

A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
Displaying 101 - 125 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.