CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C58929	Medical history carotid artery stenting recent date	Date of most recent carotid artery stenting performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
C13210	Generalized Anxiety Disorder (GAD-7) - easily annoyed scale	Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
C07377	PTSD Checklist Civilian (PCL-C) - Act indicator	Indicator of whether the subject experiences suddenly acting or feeling as if a stressful experience were happening again (as if you were reliving it), as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C07385	PTSD Checklist Civilian (PCL-C) - Emotionally numb indicator	Indicator of whether the subject experiences feeling emotionally numb or being unable to have loving feelings for those close to you, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C19262	Occupation secondary other status text	The free-text field to capture other status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
C54765	Imaging aneurysm kinetic energy mean measurement	Measurement of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C16055	Full term delivery child indicator	Indicates whether the participant's/subject's child was delivered full-term	Exploratory	Pregnancy and Perinatal History	False	Stroke	Stroke
C54773	Imaging aneurysm shear concentration index value	Value of the shear concentration index of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C55344	Microdialysis cerebral probe location anatomic site	Free-text field to describe the location of the probe for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C54995	Potency enhancing drug current former use duration	Duration in months for which the subject/participant took or has taken the specified potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C10543	Cancer head or neck radiation treatment indicator	Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation	Exploratory	Medical History	False	Stroke	Stroke
C54918	Unruptured intracranial aneurysm management compliance indicator	Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C14123	Country of residence name	Country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
C58891	Imaging aneurysm shear rate mean unit of measure	Unit of measure of the mean shear rate of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C55357	Microdialysis cerebral analyte glucose measurement	The value of glucose in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C13516	Hand strength findings result	Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C54904	Vessel occlude temporary surgery procedure count	Count of blood vessels that were temporarily occluded during surgery or other procedure	Exploratory	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C13880	Digital Subtraction Angiography (DSA) site of access anatomic site	The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
C07378	PTSD Checklist Civilian (PCL-C) - Very Upset indicator	Indicator of whether the subject experiences feeling very upset when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C58782	Race expanded maternal category	Category of race(s) or region(s) the participant/subject's mother most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
C14517	Device manufacturer name	The company responsible for development of the device	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C07386	PTSD Checklist Civilian (PCL-C) - Future indicator	Indicator of whether the subject experiences feeling as if your future will somehow be cut short, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C19482	Paid work hour week count	The number of hours per week in paid work	Exploratory	Social Status	False	Stroke	Stroke
C54766	Imaging aneurysm shear rate mean measurement	Measurement of the mean shear rate of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.