CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 551 - 575 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14260 Sebire-International Pediatric Stroke Study (IPSS) - sub type

The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13849 Bicaudate index score

Indicates Bicaudate index

 Supplemental Parenchymal Imaging False Stroke Stroke
C58755 Toxicology screen other text

The free-text field related to 'Toxicology Screen' specifying other text

 Supplemental Laboratory Tests False Stroke Stroke
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

 Supplemental Behavioral History False Stroke Stroke
C13900 Imaging probe frequency

Indicates imaging probe frequency (Hz)

 Supplemental Vessel Imaging Transcranial False Stroke Stroke
C54924 Work responsibility level previous resume indicator

Indicator of whether the subject/participant has resumed their previous level of responsibility at work

 Supplemental Return to Work False Stroke Stroke
C52697 Infection within two weeks other text

The free-text field related to the type of infection(s) within the last two weeks the participant/subject has had

 Supplemental Medical History False Stroke Stroke
C14700 Berg Balance Scale (BBS) - reach forward scale

The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Stroke Stroke
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental Imaging Acquisition False Stroke Stroke
C54990 Cocaine expose year prior unruptured intracranial aneurysm presentation indicator

Indicator of whether the subject/participant was exposed to cocaine in the year prior to clinical presentation of unruptured intracranial aneurysm (UIA)

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C54234 Echocardiogram right interventricular septal thickness end diastole measurement

Measurement of right ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C54100 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Notes text

Notes, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS TMT)

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
C18987 Extracranial venous thromboembolism prophylaxis other text

The free-text field related to 'Extracranial venous thromboembolism prophylaxis type', specifying other text

 Supplemental Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C10776 Echocardiogram left ventricle mass z-score value

Calculated z-score for the left ventricle mass (index) measured with echocardiography

 Supplemental Echocardiogram False Stroke Stroke
C54249 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Line orientation total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Line Orientation Subtest

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C13863 Imaging magnetic resonance based identification perfusion defect threshold type

Indicates MR based identification of perfusion defect threshold type used to delineate abnormality

 Supplemental Perfusion and Penumbral Imaging False Stroke Stroke
C13474 Stroke Adjudication Worksheet - TIA indicator

The indicator whether this event a transient ischemic attack (TIA)

 Supplemental Stroke Adjudication Form False Stroke Stroke
C14270 Sophia stroke vessels affected type

Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14050 Hijdra scale total score

Indicates Hijdra scale - total Score

 Supplemental Parenchymal Imaging False Stroke Stroke
C55953 Tobacco use stopped age not applicable status

Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco

 Supplemental Behavioral History False Stroke Stroke
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Imaging Acquisition False Stroke Stroke
C54920 Unruptured intracranial aneurysm rupture risk PHASES score

Score on the PHASES scale for the risk of rupture of unruptured intracranial aneurysm (UIA)

 Supplemental Unruptured Intracranial Aneurysm Management False Stroke Stroke
C12843 Cardiac MRI ventricle end systolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Stroke Stroke
C54257 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Recall Subtest

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C13871 Imaging perfusion computed tomography based identification core volume measurement

Indicates perfusion CT (PCT) based identification of core volume for all the methods used

 Supplemental Perfusion and Penumbral Imaging False Stroke Stroke
Displaying 551 - 575 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.