CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2008-C54066	C54066	Delis-Kaplan Executive Function System (DKEFS) - Condition type	Type of conditions, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58976	C58976	Medication diuretic past week type	Type of diuretic medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1179-C14404	C14404	Intra-arterial (IA) catheter-based reperfusion initiated date and time	Date (and time, if applicable and known) of last intra-arterial (IA) catheter-based reperfusion initiated for the participant/ subject at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1154-C58939	C58939	Tobacco cigarette use started age value	Age in years when participant/subject started using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1949-C54083	C54083	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Sum scaled score	Sum of scaled scores of Number Sequencing and Letter Sequencing, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1152-C58930	C58930	Hypertension treatment type	Type of treatment the participant/subject is receiving or has received for hypertension	Supplemental	Medical History	False	Stroke	Stroke
F2827-C54739	C54739	Aneurysm shape pathology type	Type of shape or pathology of the aneurysm being documented	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1171-C13827	C13827	Hematoma chronic count	Indicates number of chronic hematomas if present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C58919	C58919	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2380-C10745	C10745	Echocardiogram early mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14009	C14009	Imaging window quality result	Indicates window quality result for all categories	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C13933	C13933	Intima media thickness (IMT) mean far-wall measurement	Indicates mean intima media thickness (IMT) far-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F0372-C07097	C07097	Center for Epidemiologic Studies-Depression Scale (CES-D) - everything effort indicator	Indicates how often the subject felt that everything he/she did was an effort in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54900	C54900	Craniotomy category	Category of craniotomy performed during surgery	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1162-C14261	C14261	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - standard primary acute sub type	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: acute - all patients with defined childhood arterial ischemic stroke will be classified into a single acute primary category, at the time of initial diagnosis (within 1 month of presentation)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2838-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1167-C58756	C58756	Lab test result standard unit of measure	Unit of measure for the laboratory test result from a standardized list	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1162-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1305-C14695	C14695	Berg Balance Scale (BBS) - unsupport sit scale	The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
F2828-C54284	C54284	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1171-C58835	C58835	Perihematomal edema MRI sequence type	Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1206-C54985	C54985	Stimulant current former use type	Type of stimulant formerly or currently taken by the subject/participant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C17962	C17962	Cardiovascular tricuspid valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1178-C14635	C14635	Extracranial venous thromboembolism prophylaxis type	Type(s) of extracranial venous thromboembolism (VTE) prophylaxis used	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F0936-C10769	C10769	Echocardiogram left ventricular end - diastolic septal z score	Calculated z-score for the left ventricular end - diastolic septal thickness (LVSTd) measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.