CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 426 - 450 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14706 Berg Balance Scale (BBS) - scale total score

The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Stroke Stroke
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental Imaging Acquisition Stroke Stroke
C12841 Cardiac MRI ventricle end diastolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Stroke Stroke
C54255 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recognition total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recognition Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C13869 Imaging perfusion computed tomography based identification core value result

Result of perfusion CT (PCT) based identification of core value of abnormality

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13480 Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation indicator

The indicator of ischemic infarction with hemorrhagic transformation being present

Supplemental Stroke Adjudication Form Stroke Stroke
C12887 Echocardiogram left ventricular concentric remodel status

Status of concentric remodeling in the left ventricle on the echocardiogram

Supplemental Echocardiogram II Stroke Stroke
C10726 Echocardiogram left interventricular septal thickness end diastole measurement

Measurement of left ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography

Supplemental Echocardiogram Stroke Stroke
C19076 Sophia signs symptoms presentation neurological signs other text

The free-text field related to 'Sophia signs and symptoms on presentation type' specifying other text. Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C02426 Epidural hematoma findings type

Type of epidural hematoma (EDH)

Supplemental Parenchymal Imaging Stroke Stroke
C54750 Cerebrospinal fluid collection method other text

The free-text field related to other for method related to cerebrospinal fluid (CSF) being collected

Supplemental Biospecimen Collection and Processing Stroke Stroke
C58940 Tobacco cigarette use stopped age value

Age in years when participant/subject stopped using cigarettes

Supplemental Behavioral History Stroke Stroke
C14228 Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) - standard sub type

Ischemic Stroke Subtype based on the Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) Classification System

Supplemental Stroke Types and Subtypes Stroke Stroke
C12849 Cardiac MRI left ventricle trabeculations count

Count of trabeculations in the left ventricle when non-compaction is present

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Stroke Stroke
C54263 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval lower bound value

Confidence interval lower bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C13877 Imaging perfusion computed tomography based identification penumbra method type

Indicates PCT based identification of penumbra method used for penumbra calculation

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C18884 Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms other text

The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type' specifying other text. The type of symptoms/conditions that were present and relevant for cardioembolic source

Supplemental Stroke Adjudication Form Stroke Stroke
C12895 Echocardiogram right ventricular internal dimension end systole measurement

Measurement of right ventricular end - systolic internal dimension (RVIDs) obtained by echocardiography

Supplemental Echocardiogram II Stroke Stroke
C58736 Needle gauge size type other text

The free-text field related to 'Needle gauge size type' specifying other text

Supplemental Biospecimen Collection and Processing Stroke Stroke
C04504 ECG heart rhythm result type

Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) Stroke Stroke
C10734 Echocardiogram left ventricle mass measurement

Left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Stroke Stroke
C58898 Causative Classification System (CCS) - large artery atherosclerosis phenotype status

The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58827 Hyperdense venous sinus or cortical vein specify text

Specify in text the hyperdense observations that were made

Supplemental Parenchymal Imaging Stroke Stroke
C58874 Location post-acute stroke discharge other text

The free-text field related to 'Location post-acute stroke discharge type' specifying other text. Indicates the participant's/subject's current location after discharge from the acute hospital for the index stroke/transient ischemic attack (TIA)

Supplemental Rehabilitation Therapies Stroke Stroke
C02492 Venous sinus injury anatomic site

Anatomic site of the venous sinus injury

Supplemental Vessel Imaging Angiography Stroke Stroke
Displaying 426 - 450 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.