CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0345-C07193	C07193	Glasgow Outcome Scale (GOS) - score	Glasgow Outcome Scale (1-5)	Supplemental	Glasgow Outcome Scale (GOS)	False	Stroke	Stroke
F2380-C12914	C12914	Echocardiogram result status	Status of the global results of the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1949-C54089	C54089	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Contrast scaled score	Contrast scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C58813	C58813	Aneurysm formation de novo indicator	Indicator for the presence of de novo formation of aneurysm since last imaging	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C12865	C12865	Echocardiogram left atrial volume measurement	Measurement of the left atrial volume obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1165-C01557	C01557	Respiratory support type	Type of respiratory support participant/subject received	Supplemental	Vital Signs	False	Stroke	Stroke
F2838-C14016	C14016	High intensity transient signal hits start time	Indicates high intensity transient signal hits start time	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1158-C08147	C08147	Data source	Source of the data provided on the case report form	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F0372-C07104	C07104	Center for Epidemiologic Studies-Depression Scale (CES-D) - loneliness indicator	Indicates how often the subject felt lonely in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54907	C54907	Aneurysm treatment endovascular type	Type of endovascular aneurysm treatment	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58862	C58862	Contraceptive hormone replacement treatment counsel indicator	Indicates if counseling relating to contraceptive/hormone replacement treatment was provided at discharge. The intervention can be discussion or use of alternate treatment or approaches	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1164-C13525	C13525	Carotid bruit type	Type of carotid bruit found during the examination	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F2838-C13900	C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13890	C13890	Qureshi angiographic occlusions category	The score based on scheme that categorizes patients with ischemic stroke based on findings observed on initial angiography (the Qureshi angiographic occlusions scale score)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58991	C58991	Medication hormone replacement therapy route type	Type of administration route for the hormone replacement therapy medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2824-C54924	C54924	Work responsibility level previous resume indicator	Indicator of whether the subject/participant has resumed their previous level of responsibility at work	Supplemental	Return to Work	False	Stroke	Stroke
F1171-C13804	C13804	Age-related white matter changes (ARWMC) scale - infratentorial cerebellum score	The infratentorial/cerebellum score from the age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C21668	C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1154-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Stroke	Stroke
F1171-C02445	C02445	Intraventricular hemorrhage volume measurement	Measured volume in cubic centimeters of intraventricular hemorrhage	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1152-C52623	C52623	Aortic thoracic aneurysm specify text	The free-text field related to the type of aortic or thoracic aneurysm	Supplemental	Medical History	False	Stroke	Stroke
F2838-C14029	C14029	Vasospasm posterior ratio result	Indicates vasospasm posterior ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1158-C58808	C58808	Pre-hospital severity scale type	The stroke severity scale used to determine stroke severity before hospital intake	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2827-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1182-C14284	C14284	Resource Utilization Group Version IV (RUG IV) - alpha-numeric code	Indicates the Resource Utilization Group Version IV (RUG IV). Medicare pays skilled nursing facilities (SNFs) under a Prospective Payment System (PPS). PPS payments are per diem rates based on the patient's condition as determined by classification into a specific Resource Utilization Group (RUG). This classification is done by the use of a clinical assessment tool, the Minimum Data Set (MDS) and is required to be performed periodically according to an established schedule for purposes of Medicare payment. Each MDS represents the patient's clinical status based on an assessment reference date and established look back periods for the covered days associated with that MDS	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.