CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C18910	Intraventricular hemorrhage presumed cause other text	The free-text field related to 'Intraventricular hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C58837	Epidural hematoma thickness measurement	Measured thickness in mm of the epidural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14225	Trial of ORG 10172 in Acute Stroke Treatment (TOAST) - ischemic stroke sub type	Ischemic Stroke Subtype based on the Trial of ORG 10172 in Acute Stroke Treatment (TOAST) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C14028	Vasospasm present indicator	Indicates presence of vasospasm	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C14055	Stroke Adjudication Worksheet - neuroimaging MRI stroke finding indicator	Whether the MRI was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C04503	ECG heart rate	Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (EKG) being reported. Also called Heart Rate (HR)	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
C13836	Fisher grade	Indicates Fisher grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C58714	Death WHO definition indicator	The indicator of whether the death is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin	Supplemental	Death	False	Stroke	Stroke
C13942	Imaging vessel category	Indicates vessel category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C22608	Total rehabilitation session count	The total number of rehabilitation sessions the participant/subject has been part of	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Imaging Acquisition	False	Stroke	Stroke
C02491	Venous sinus injury status	Status of compression (>50%), occlusion, or laceration of a dural venous sinus due to trauma	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C18877	Echocardiogram systolic pressure estimation other text	The free-text field related to 'Echocardiogram systolic pressure estimation type' specifying other text. Technique used to estimate the right ventricular systolic pressure	Supplemental	Echocardiogram II	False	Stroke	Stroke
C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
C10771	Echocardiogram left ventricular end - systolic internal dimension z score	Calculated z-score for the left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
C58911	Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type	Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C58895	Clinical stroke tissue based ischemic stroke laterality type	Indicate the laterality of the ischemic stroke	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C14235	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - sub type	Stroke Subtype as defined by the A-S-C-O pattern (e.g., A1-S3-C1-O3)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C14038	Imaging power M mode right middle cerebral artery result type	Indicates power M mode for right middle cerebral artery (MCA) result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C04511	ECG QT interval	Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
C13847	Imaging shift measurement	Indicates Shift measurement (mm)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13950	Imaging spectrum asymmetry index result	Indicates spectrum asymmetry index result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.