CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C10737	Echocardiogram left ventricular outflow tract obstruction indicator	Indicator of whether the echocardiogram shows that the participant/subject has a left ventricular outflow tract (LVOT)	Supplemental	Echocardiogram	False	Stroke	Stroke
C58902	Causative Classification System (CCS) - other uncommon cause phenotype status	The status of the predefined other uncommon causes phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C58832	Imaging chronic infarct count category	Indicates number of chronic infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C58877	Inpatient therapy or rehabilitation location type	Type of inpatient location where the participant subject received therapy or rehabilitation services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C54675	Imaging aneurysm anatomic site	Anatomic site of aneurysm scanned scanned in the imaging study	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C14245	Hunt and Hess scale	This is a 5 level scale for classifying the severity of Subarachnoid Hemorrhage (SAH), the higher the score the lower the likelihood of survival	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13831	Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score	Indicates Graeb IVH Scale - Right lateral ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14147	Family history coronary artery disease (CAD) youngest age value	If there is a family history of coronary artery disease (CAD), specify the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack	Supplemental	Family History	False	Stroke	Stroke
C52602	Medical history migraine aura indicator	The indicator related to the participant/subject having migraine(s) with aura	Supplemental	Medical History	False	Stroke	Stroke
C17506	Cardiac MRI result comment text	Results comments on the cardiac Magnetic Resonance Imaging results	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
C54275	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C12907	Echocardiogram right ventricle non-compaction status	Status of non-compaction in the right ventricle as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
C04515	ECG ventricular arrhythmia type	Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
C10745	Echocardiogram early mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) assessed with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
C58840	Subdural hematoma location anatomic site	The location of the subdural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14253	Subarachnoid hemorrhage ambient cistern score	SAH Volume Scale (Hijdra) - Ambient cistern left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13839	Hijdra scale value	Indicates Hijdra scale - value	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C01710	Pregnancy test qualitative result value	Result of the pregnancy test	Supplemental	Laboratory Tests	False	Stroke	Stroke
C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
C14188	Neonatal level of consciousness type	Type of abnormal level of consciousness of the neonate	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant/subject's medical history was taken	Supplemental	Medical History	False	Stroke	Stroke
C14694	Berg Balance Scale (BBS) - unsupport stand scale	The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
C54283	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.