CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C14020	Sickle cell disease vessel anatomic site	Indicates sickle cell vessel	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C07104	Center for Epidemiologic Studies-Depression Scale (CES-D) - loneliness indicator	Indicates how often the subject felt lonely in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
C54908	Blood vessel rupture surgery procedure evidence indicator	Indicator of whether there is evidence of blood vessel rupture during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58862	Contraceptive hormone replacement treatment counsel indicator	Indicates if counseling relating to contraceptive/hormone replacement treatment was provided at discharge. The intervention can be discussion or use of alternate treatment or approaches	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
C13882	Magnetic resonance angiography type	The type as related to magnetic resonance angiography (MRA)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C58991	Medication hormone replacement therapy route type	Type of administration route for the hormone replacement therapy medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C13807	Imaging magnetic resonance imaging leukoariaiosis volumetric measurement	Indicates MRI volumetric measure (cc)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs	False	Stroke	Stroke
C13914	Imaging plaque residual lumen result	Indicates plaque residual lumen	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C58279	Residence current occupy duration text	Text field for indicating the duration for which the subject/participant has occupied his/her current residence	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C10541	Diabetes treatment type	Type of treatment the participant/subject is receiving or has received for diabetes mellitus	Supplemental	Medical History	False	Stroke	Stroke
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Demographics	False	Stroke	Stroke
C14032	Vasospasm severity grade	Indicates severity of vasospasm	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C10723	Echocardiogram completed indicator	Whether an echocardiogram was performed on the participant/subject	Supplemental	Echocardiogram	False	Stroke	Stroke
C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C14284	Resource Utilization Group Version IV (RUG IV) - alpha-numeric code	Indicates the Resource Utilization Group Version IV (RUG IV). Medicare pays skilled nursing facilities (SNFs) under a Prospective Payment System (PPS). PPS payments are per diem rates based on the patient's condition as determined by classification into a specific Resource Utilization Group (RUG). This classification is done by the use of a clinical assessment tool, the Minimum Data Set (MDS) and is required to be performed periodically according to an established schedule for purposes of Medicare payment. Each MDS represents the patient's clinical status based on an assessment reference date and established look back periods for the covered days associated with that MDS	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C53900	Stroop Color and Word Test (SCW) - Color raw score	Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
C13944	Imaging color flow indicator	Indicates color flow	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13897	Imaging vessel angiography collateral status anatomic site	Indicates vessel angiography collateral status location	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C58731	Occupation primary after event status	The status indicating the participant's/subject's primary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
C13815	Hematoma lobar region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a lobar region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C58790	Intracranial revascularization procedure other text	The free-text field related to 'Intracranial revascularization procedure type' specifying other text. Type of intracranial revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
C54050	D-KEFS Color-Word Interference Test (CWIT) -Total Self-corrected Errors Count	Count of total self-corrected errors, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.