CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C58743	C58743	Shipping conditions type other text	The free-text field related to other shipping conditions type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1177-C04513	C04513	ECG ST segment abnormality status	Status of an abnormal interval between the end of the QRS complex and the beginning of the T wave (ST segment) on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10739	C10739	Echocardiogram mean pressure gradient measurement	Mean pressure gradient measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1171-C58838	C58838	Epidural hematoma location anatomic site	The location of the epidural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C54758	C54758	Imaging aneurysm irregular indicator	Indicator of whether the aneurysm is irregular as determined with imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14251	C14251	Subarachnoid hemorrhage basal part score	SAH Volume Scale (Hijdra) - Basal part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13837	C13837	Modified Fisher scale grade	Indicates modified Fisher Scale grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1167-C01706	C01706	Lab test result text	Result of the laboratory test	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1154-C00700	C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
F1160-C14183	C14183	Stroke symptom timing in relation to stroke onset category	This element captures the time course of a symptom associated with the index stroke. The element is intended to be recorded for each symptom separately	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1056-C17929	C17929	Cardiac MRI overall impression text	Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54276	C54276	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score	Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1206-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C12908	C12908	Echocardiogram intracardiac find type	Type of intracardiac findings observed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F0936-C10747	C10747	Echocardiogram mitral inflow deceleration time	Measurement of the mitral inflow (E) deceleration time assessed with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1172-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1182-C58888	C58888	Follow-up care specialist other text	The free-text field related to 'Follow-up care specialist type' specifying other text. Type of specialist the participant/subject received follow-up care from	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C14259	C14259	Pediatric Stroke Classification (PSC) - sub type	Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13848	C13848	Hydrocephalus present indicator	Indicates if hydrocephalus is present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1167-C01714	C01714	Pregnancy test not applicable reason	Reason that performance of a pregnancy test was not applicable to the participant/subject	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1154-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Stroke	Stroke
F1162-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2838-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1152-C52696	C52696	Infection within two weeks type	The element related to the type of infection(s) within the last two weeks the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.