CDE Catalog

***Please contact NINDS CDE team ( in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 251 - 275 of 1886
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18422 Glasgow Outcome Scale Extended (GOS-E) - Relationship disruption pre-injury change level indicator

Indicator if the level of disruption or strain in family and friendships depicts a change in respect to pre-injury situation as part of Glasgow Outcome Scale Extended (GOS-E)

Supplemental Glasgow Outcome Scale Extended (GOSE) Stroke Stroke
C13751 Imaging acquisition reason

Describes why the imaging study was performed

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13229 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - average score

The average score for the participant's/subject's answers on the IQCODE

Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Stroke Stroke
C58714 Death WHO definition indicator

The indicator of whether the death is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin

Supplemental Death Stroke Stroke
C58846 Discharge origin location other text

The free-text field related to 'Discharge origin location type', specifying other text

Supplemental Lifestyle Modification Therapies Stroke Stroke
C07335 Neurobehavioral Symptom Inventory (NSI) - Appetite impairment score

Score of subject's appetite impairment, as part of the Neurobehavioral Symptom Inventory (NSI)

Supplemental Neurobehavioral Symptom Inventory (NSI) Stroke Stroke
C21954 Pediatric Quality of Life Inventory(PedsQL) - Psychosocial health summary score

Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Stroke Stroke
C13245 National Institutes of Health Stroke Scale (NIHSS) - severity total score

The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C08529 36-item Short Form Health Survey (SF-36) - Times worn out score

Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Stroke Stroke
C13793 Modified Scheltens scale frontal score

Indicates Modified Scheltens scale - Frontal score

Supplemental Parenchymal Imaging Stroke Stroke
C14405 Intervention mechanical or pharmacological end time

The end time for mechanical, pharmacologic intervention for the participant/subject

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C52605 Medical history carotid artery stenting anatomic site

The element related to the location of carotid artery stenting the participant/subject has had

Supplemental Medical History Stroke Stroke
C54234 Echocardiogram right ventricle IVSTd measurement

Right ventricular end - diastolic septal thickness (IVSTd) measured with echocardiography

Supplemental Echocardiogram II Stroke Stroke
C54100 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Notes text

Notes, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C21824 Beck Anxiety Inventory (BAI) - Dizziness bother scale

Scale that represents how much the participant has been bothered by dizziness as part of the Beck Anxiety Inventory (BAI)

Supplemental Beck Anxiety Inventory (BAI) Stroke Stroke
C54249 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Line orientation total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Line Orientation Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C20434 Beck Depression Inventory II (BDI-II) - Worthlessness scale

Scale identifying level of worthlessness, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Stroke Stroke
C12870 Echocardiogram pulmonic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart

Supplemental Echocardiogram II Stroke Stroke
C54988 Stimulant current former use age start value

Age in years at which the subject/participant began taking the selected former or current stimulant

Supplemental Prior and Concomitant Medications Stroke Stroke
C20481 Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition response bias raw score

Raw score for Recognition Response Bias portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) Stroke Stroke
C58843 Findings other present indicator

Indicates if Other findings

Supplemental Parenchymal Imaging Stroke Stroke
C13140 Stroke Specific Quality of Life Scale (SS-QOL) - tired energy question scale

The scale for feeling tired most of the time based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Stroke Stroke
C10734 Echocardiogram left ventricle mass measurement

Left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Stroke Stroke
C54764 Imaging aneurysm parent branch vessel occlusion indicator

Indicator of whether a parent or branch vessel of the aneurysm exhibits occlusion, as determined from imaging

Supplemental Vessel Imaging Angiography Stroke Stroke
C13481 Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site

The anatomic location(s) of the hemorrhagic transformation during ischemic infarction

Supplemental Stroke Adjudication Form Stroke Stroke
Displaying 251 - 275 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.