CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C18422	Glasgow Outcome Scale Extended (GOS-E) - Relationship disruption pre-injury change level indicator	Indicator if the level of disruption or strain in family and friendships depicts a change in respect to pre-injury situation as part of Glasgow Outcome Scale Extended (GOS-E)	Supplemental	Glasgow Outcome Scale Extended (GOSE)	True	Stroke	Stroke
C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C13229	Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - average score	The average score for the participant's/subject's answers on the IQCODE	Supplemental	Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)	True	Stroke	Stroke
C58714	Death WHO definition indicator	The indicator of whether the death is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin	Supplemental	Death	False	Stroke	Stroke
C58846	Discharge origin location other text	The free-text field related to 'Discharge origin location type', specifying other text	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
C07335	Neurobehavioral Symptom Inventory (NSI) - Appetite impairment score	Score of subject's appetite impairment, as part of the Neurobehavioral Symptom Inventory (NSI)	Supplemental	Neurobehavioral Symptom Inventory (NSI)	True	Stroke	Stroke
C21954	Pediatric Quality of Life Inventory(PedsQL) - Psychosocial health summary score	Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL)	Supplemental	Pediatric Quality of Life Inventory (PEDSQL)	True	Stroke	Stroke
C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
C08529	36-item Short Form Health Survey (SF-36) - Times worn out score	Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C13793	Modified Scheltens scale frontal score	Indicates Modified Scheltens scale - Frontal score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14405	Intervention mechanical or pharmacological end time	The end time for mechanical, pharmacologic intervention for the participant/subject	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C52605	Medical history carotid artery stenting anatomic site	The element related to the location of carotid artery stenting the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
C54234	Echocardiogram right ventricle IVSTd measurement	Right ventricular end - diastolic septal thickness (IVSTd) measured with echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
C54100	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Notes text	Notes, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
C21824	Beck Anxiety Inventory (BAI) - Dizziness bother scale	Scale that represents how much the participant has been bothered by dizziness as part of the Beck Anxiety Inventory (BAI)	Supplemental	Beck Anxiety Inventory (BAI)	True	Stroke	Stroke
C54249	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Line orientation total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Line Orientation Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
C20434	Beck Depression Inventory II (BDI-II) - Worthlessness scale	Scale identifying level of worthlessness, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Stroke	Stroke
C12870	Echocardiogram pulmonic stenosis degree status	Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart	Supplemental	Echocardiogram II	False	Stroke	Stroke
C54988	Stimulant current former use age start value	Age in years at which the subject/participant began taking the selected former or current stimulant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C20481	Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition response bias raw score	Raw score for Recognition Response Bias portion of Brief Visuospatial Memory Test - Revised (BVMT-R)	Supplemental	Brief Visuospatial Memory Test Revised (BVMT-R)	True	Stroke	Stroke
C58843	Findings other present indicator	Indicates if Other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13140	Stroke Specific Quality of Life Scale (SS-QOL) - tired energy question scale	The scale for feeling tired most of the time based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Stroke	Stroke
C10734	Echocardiogram left ventricle mass measurement	Left ventricle mass (index) measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
C54764	Imaging aneurysm parent branch vessel occlusion indicator	Indicator of whether a parent or branch vessel of the aneurysm exhibits occlusion, as determined from imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C13481	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site	The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.