CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C54999 Medication immunosuppressant current former take other text

The free-text field related to 'Medication immunosuppressant current former type' specifying other text

Exploratory Prior and Concomitant Medications Stroke Stroke
C58934 Chickenpox past twelve month indicator

The indicator related to whether the participant/subject has had chickenpox in the past 12 months

Exploratory Medical History Stroke Stroke
C52621 Medical history artificial valve type

The element related to the type of artificial valve

Exploratory Medical History Stroke Stroke
C13774 Imaging one third middle cerebral artery territory involved indicator

Indicates if 1/3 middle cerebral artery (MCA) territory is involved

Exploratory Parenchymal Imaging Stroke Stroke
C13519 Lower limb tone findings result

Assess tone of lower limbs on the affected side using the Orgogozo Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C58825 Intracranial aneurysm rupture delivery status

The element related to the time when the rupture of the brain aneurysm occurred, either before, during or after delivery

Exploratory Pregnancy and Perinatal History Stroke Stroke
C54915 Unruptured intracranial aneurysm management plan initial status

Status of initial management plan for unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C58884 Supportive medical equipment indicator

Indicates if the participant/ subject was provided with any supportive medical equipment

Exploratory Rehabilitation Therapies Stroke Stroke
C55348 Device model number

The model number for the device used

Exploratory Biospecimen Collection and Processing Stroke Stroke
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
C17475 Cardiovascular history cardiac surgery type

Type of cardiac surgery or mechanical intervention the participant/subject underwent

Exploratory Medical History Stroke Stroke
C54914 Home own relative time spent duration

Duration in days of time spent in own or relative's home

Exploratory Home Time Stroke Stroke
C55361 Microdialysis cerebral novel target analyte indicator

The indicator related to whether there were any novel target analytes in the cerebral microdialysis

Exploratory Biospecimen Collection and Processing Stroke Stroke
C54771 Imaging aneurysm wall shear stress maximum measurement

Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C22679 Medical history first depressive episode diagnosis age value

Value of a participant's/subject's age when first depressive episode was diagnosed

Exploratory Medical History Stroke Stroke
C07382 PTSD Checklist Civilian (PCL-C) - Remember important part indicator

Indicator of whether the subject experiences trouble remembering important parts of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C07390 PTSD Checklist Civilian (PCL-C) - Super alert indicator

Indicator of whether the subject experiences being "super-alert" or watchful or on guard, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C19260 Occupation secondary status

The status indicating the participant's/subject's current secondary occupational status

Exploratory Social Status Stroke Stroke
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

Exploratory Death Stroke Stroke
C14011 Intracranial stenosis present indicator

Indicates presence of intracranial stenosis

Exploratory Aneurysm Location and Dimensions Stroke Stroke
C58935 Facial segmental hemangioma PHACE syndrome indicator

The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome

Exploratory Medical History Stroke Stroke
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Exploratory Family History Stroke Stroke
C54740 Aneurysm followup shape type

Type of shape of the aneurysm at follow-up

Exploratory Aneurysm Location and Dimensions Stroke Stroke
C52622 Medical history cardiac catheterization recency rate

The element related to the recency of cardiac catheterization the participant/subject has had

Exploratory Medical History Stroke Stroke
Displaying 26 - 50 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.