CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C55358	C55358	Microdialysis cerebral analyte pyruvate measurement	The value of pyruvate in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F2567-C07381	C07381	PTSD Checklist Civilian (PCL-C) - Activities indicator	Indicator of whether the subject experiences avoiding activities or situations because they reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F2567-C07389	C07389	PTSD Checklist Civilian (PCL-C) - Difficulty concentrating indicator	Indicator of whether the subject experiences having difficulty concentrating, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1169-C14517	C14517	Device manufacturer name	The company responsible for development of the device	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1152-C58354	C58354	Other cancer type text	Text of type of other cancer(s) that the subject/participant has ever been diagnosed with	Exploratory	Medical History	False	Stroke	Stroke
F1174-C54762	C54762	Imaging aneurysm occlusion percent value	Value of percentage of aneurysm that is occluded, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2822-C12610	C12610	Death location type	Type of location where the participant/subject died	Exploratory	Death	False	Stroke	Stroke
F1206-C18827	C18827	Gastrointestinal therapy nutrition supplement other text	The free-text field related to 'Gastrointestinal therapy nutrition supplement type' specifying other text. Type(s) of nutritional supplement(s) being taken by the participant/subject	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1150-C10676	C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
F1152-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F1164-C13517	C13517	Hand function findings result	Assess hand function on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C52603	C52603	Medical history migraine active last year indicator	The indicator related to the participant/subject having had an active migraine within the last year	Exploratory	Medical History	False	Stroke	Stroke
F1206-C59000	C59000	Medication L-asparaginase current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1151-C19259	C19259	Occupation primary other status text	The free-text field to capture other status indicating the participant's/subject's current primary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F1169-C55346	C55346	Microdialysis cerebral probe molecular weight limit value	The field to specify the molecular weight limit for probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F2832-C13207	C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2461-C54914	C54914	Home own relative time spent duration	Duration in days of time spent in own or relative's home	Exploratory	Home Time	False	Stroke	Stroke
F1152-C52621	C52621	Medical history artificial valve type	The element related to the type of artificial valve	Exploratory	Medical History	False	Stroke	Stroke
F1169-C55359	C55359	Microdialysis cerebral analyte lactate measurement	The value of lactate in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F2567-C07382	C07382	PTSD Checklist Civilian (PCL-C) - Remember important part indicator	Indicator of whether the subject experiences trouble remembering important parts of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F2567-C07390	C07390	PTSD Checklist Civilian (PCL-C) - Super alert indicator	Indicator of whether the subject experiences being "super-alert" or watchful or on guard, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1152-C58926	C58926	Medical history hemorrhagic stroke range	The element related to the number of hemorrhagic strokes the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
F2822-C18862	C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Exploratory	Death	False	Stroke	Stroke
F1152-C58934	C58934	Chickenpox past twelve month indicator	The indicator related to whether the participant/subject has had chickenpox in the past 12 months	Exploratory	Medical History	False	Stroke	Stroke
F1174-C54771	C54771	Imaging aneurysm wall shear stress maximum measurement	Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.