CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 26 - 50 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C07388	PTSD Checklist Civilian (PCL-C) - Irritable indicator	Indicator of whether the subject experiences feeling irritable or having angry outbursts, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C12208	Gastrointestinal therapy nutrition supplement type	Type(s) of nutritional supplement(s) being taken by the participant/subject	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C58884	Supportive medical equipment indicator	Indicates if the participant/ subject was provided with any supportive medical equipment	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
C55344	Microdialysis cerebral probe location anatomic site	Free-text field to describe the location of the probe for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C54915	Unruptured intracranial aneurysm management plan initial status	Status of initial management plan for unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C55357	Microdialysis cerebral analyte glucose measurement	The value of glucose in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C54767	Imaging aneurysm vorticity mean measurement	Measurement of the mean vorticity of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
C54914	Home own relative time spent duration	Duration in days of time spent in own or relative's home	Exploratory	Home Time	False	Stroke	Stroke
C54999	Medication immunosuppressant current former take other text	The free-text field related to 'Medication immunosuppressant current former type' specifying other text	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
C54775	Imaging aneurysm oscillatory shear stress mean value	Value of the mean oscillatory shear stress of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C07382	PTSD Checklist Civilian (PCL-C) - Remember important part indicator	Indicator of whether the subject experiences trouble remembering important parts of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C58897	Imaging aneurysm viscous dissipation unit of measure	Unit of measure of the mean viscous dissipation of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C07389	PTSD Checklist Civilian (PCL-C) - Difficulty concentrating indicator	Indicator of whether the subject experiences having difficulty concentrating, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C13516	Hand strength findings result	Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C12610	Death location type	Type of location where the participant/subject died	Exploratory	Death	False	Stroke	Stroke
C52695	Cancer diagnosis type	The element related to the type of cancer diagnosis the participant/subject has or had	Exploratory	Medical History	False	Stroke	Stroke
C52706	Mitochondrial encephalomyopathy lactic acidosis stroke like episodes indicator	The indicator related to whether the participant/subject has or had mitochondrial encephalomyopathy, lactic acidosis and stroke-like episodes (MELAS)	Exploratory	Medical History	False	Stroke	Stroke
C58999	Medication cold preparation current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken cold preparations/ medications	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C14011	Intracranial stenosis present indicator	Indicates presence of intracranial stenosis	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
C58931	Menopause treatment type	Type of treatment the participant/subject is receiving or has received for menopause	Exploratory	Medical History	False	Stroke	Stroke
C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke
C18827	Gastrointestinal therapy nutrition supplement other text	The free-text field related to 'Gastrointestinal therapy nutrition supplement type' specifying other text. Type(s) of nutritional supplement(s) being taken by the participant/subject	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.