CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1206-C58999	C58999	Medication cold preparation current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken cold preparations/ medications	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C17475	C17475	Cardiovascular history cardiac surgery type	Type of cardiac surgery or mechanical intervention the participant/subject underwent	Exploratory	Medical History	False	Stroke	Stroke
F1164-C13518	C13518	Upper limb tone findings result	Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C22679	C22679	Medical history first depressive episode diagnosis age value	Value of a participant's/subject's age when first depressive episode was diagnosed	Exploratory	Medical History	False	Stroke	Stroke
F1153-C18678	C18678	Family history medical condition other text	The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken	Exploratory	Family History	False	Stroke	Stroke
F2567-C07390	C07390	PTSD Checklist Civilian (PCL-C) - Super alert indicator	Indicator of whether the subject experiences being "super-alert" or watchful or on guard, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1169-C55347	C55347	Microdialysis cerebral probe membrane length measurement	The field to specify the membrane length for probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54762	C54762	Imaging aneurysm occlusion percent value	Value of percentage of aneurysm that is occluded, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2822-C18862	C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Exploratory	Death	False	Stroke	Stroke
F1152-C52622	C52622	Medical history cardiac catheterization recency rate	The element related to the recency of cardiac catheterization the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
F1206-C18827	C18827	Gastrointestinal therapy nutrition supplement other text	The free-text field related to 'Gastrointestinal therapy nutrition supplement type' specifying other text. Type(s) of nutritional supplement(s) being taken by the participant/subject	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1169-C55360	C55360	Microdialysis cerebral analyte lactate pyruvate ratio value	The ratio of lactate to pyruvate in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F2436-C54915	C54915	Unruptured intracranial aneurysm management plan initial status	Status of initial management plan for unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2832-C13207	C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2461-C54914	C54914	Home own relative time spent duration	Duration in days of time spent in own or relative's home	Exploratory	Home Time	False	Stroke	Stroke
F1152-C58935	C58935	Facial segmental hemangioma PHACE syndrome indicator	The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome	Exploratory	Medical History	False	Stroke	Stroke
F2567-C07382	C07382	PTSD Checklist Civilian (PCL-C) - Remember important part indicator	Indicator of whether the subject experiences trouble remembering important parts of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1164-C58817	C58817	Parietal lobe function status	Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1151-C19262	C19262	Occupation secondary other status text	The free-text field to capture other status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F2827-C54740	C54740	Aneurysm followup shape type	Type of shape of the aneurysm at follow-up	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1152-C10543	C10543	Cancer head or neck radiation treatment indicator	Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation	Exploratory	Medical History	False	Stroke	Stroke
F1150-C14123	C14123	Country of residence name	Country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
F1206-C59000	C59000	Medication L-asparaginase current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F2827-C14011	C14011	Intracranial stenosis present indicator	Indicates presence of intracranial stenosis	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1171-C13774	C13774	Imaging one third middle cerebral artery territory involved indicator	Indicates if 1/3 middle cerebral artery (MCA) territory is involved	Exploratory	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.