CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1164-C13517	C13517	Hand function findings result	Assess hand function on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C52603	C52603	Medical history migraine active last year indicator	The indicator related to the participant/subject having had an active migraine within the last year	Exploratory	Medical History	False	Stroke	Stroke
F1151-C19259	C19259	Occupation primary other status text	The free-text field to capture other status indicating the participant's/subject's current primary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F1169-C55359	C55359	Microdialysis cerebral analyte lactate measurement	The value of lactate in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54769	C54769	Imaging aneurysm vortex coreline length measurement	Measurement of the vortex coreline length of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C54777	C54777	Imaging aneurysm inflow concentration index value	Value of the inflow concentration index of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1152-C58926	C58926	Medical history hemorrhagic stroke range	The element related to the number of hemorrhagic strokes the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
F1206-C54995	C54995	Potency enhancing drug current former use duration	Duration in months for which the subject/participant took or has taken the specified potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F2436-C54917	C54917	Unruptured intracranial aneurysm treatment reason	Reason for treatment of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1152-C58934	C58934	Chickenpox past twelve month indicator	The indicator related to whether the participant/subject has had chickenpox in the past 12 months	Exploratory	Medical History	False	Stroke	Stroke
F2832-C13209	C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2567-C07376	C07376	PTSD Checklist Civilian (PCL-C) - Dream indicator	Indicator of whether the subject experiences repeated, disturbing dreams of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F2567-C07384	C07384	PTSD Checklist Civilian (PCL-C) - Distant indicator	Indicator of whether the subject experiences feeling distant or cut off from other people, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1169-C55346	C55346	Microdialysis cerebral probe molecular weight limit value	The field to specify the molecular weight limit for probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54761	C54761	Wall opposition stent flow diverter quality grade	Grade of wall opposition quality for stents or flow diverters	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2567-C07426	C07426	PTSD Checklist Civilian (PCL-C) - Total score	A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1152-C52621	C52621	Medical history artificial valve type	The element related to the type of artificial valve	Exploratory	Medical History	False	Stroke	Stroke
F1155-C58825	C58825	Intracranial aneurysm rupture delivery status	The element related to the time when the rupture of the brain aneurysm occurred, either before, during or after delivery	Exploratory	Pregnancy and Perinatal History	False	Stroke	Stroke
F1152-C17475	C17475	Cardiovascular history cardiac surgery type	Type of cardiac surgery or mechanical intervention the participant/subject underwent	Exploratory	Medical History	False	Stroke	Stroke
F1164-C13518	C13518	Upper limb tone findings result	Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C22679	C22679	Medical history first depressive episode diagnosis age value	Value of a participant's/subject's age when first depressive episode was diagnosed	Exploratory	Medical History	False	Stroke	Stroke
F1164-C58816	C58816	Frontal lobe function status	Assess frontal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1151-C19260	C19260	Occupation secondary status	The status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F1169-C55360	C55360	Microdialysis cerebral analyte lactate pyruvate ratio value	The ratio of lactate to pyruvate in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F2436-C54918	C54918	Unruptured intracranial aneurysm management compliance indicator	Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.