CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Stroke Stroke
C04807 Vital status

Status of participant/subject as alive or dead

Core Death Stroke Stroke
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Stroke Stroke
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Stroke Stroke
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Stroke Stroke
C14639 Ambulatory status

Status that reflects the participant's ability to walk

Core Prior Functional Status Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Stroke Stroke
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Stroke Stroke
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core Vital Signs Stroke Stroke
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core Stroke Stroke
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core Demographics Stroke Stroke
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core Demographics Stroke Stroke
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core General Core Stroke Stroke
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core Demographics Stroke Stroke
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core Demographics Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core Stroke Types and Subtypes Stroke Stroke
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Core Vital Signs Stroke Stroke
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core General Core Stroke Stroke
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Stroke Stroke
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core Pregnancy and Perinatal History Stroke Stroke
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core Vital Signs Stroke Stroke
C54919 Unruptured intracranial aneurysm management noncompliance text

The free-text field related to 'Unruptured intracranial aneurysm management compliance indicator' specifying noncompliance

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
C07378 PTSD Checklist Civilian (PCL-C) - Very Upset indicator

Indicator of whether the subject experiences feeling very upset when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
Displaying 1 - 25 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.