CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1160-C14187	C14187	Stroke symptom pediatric-specific type	The pediatric-specific symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C18906	C18906	Stroke symptom pediatric-specific other text	The free-text field related to 'Stroke symptom pediatric-specific type' specifying other text	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C18905	C18905	Stroke symptom other text	The free-text field related to 'Stroke symptom type' specifying other text. The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14179	C14179	Stroke symptom experienced indicator	Indicates whether or not the symptom was experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14182	C14182	Stroke symptom duration range	The range of approximate stroke symptom duration. This is especially important if the diagnosis is Transient Ischemic Attack (TIA)	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1180-C58784	C58784	Stroke surgical therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject while being treated in the hospital for the index stroke event	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58786	C58786	Stroke surgical therapeutic procedure other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58801	C58801	Stroke surgical operative preventive treatment type	Type of surgical/operative preventative treatment the participant/ subject received or was evaluated and scheduled for as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58800	C58800	Stroke surgical operative preventive treatment indicator	Indicates whether or not the participant/ subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58803	C58803	Stroke surgical operative preventive neurosurgical treatment other text	The free-text field related to 'Stroke surgical operative preventive treatment type' specifying neurosurgical/operative preventative treatment other text. Type of other neurosurgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58802	C58802	Stroke surgical operative preventive cardiac treatment text	The free-text field related to 'Stroke surgical operative preventive treatment type' specifying cardiac surgical/operative preventative treatment text. Type of cardiac surgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58785	C58785	Stroke neurosurgical procedure non vascular other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other non-vascular neurosurgical procedure text. Type of non-vascular neurosurgical procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1163-C14627	C14627	Stroke initial residence or discharge destination type	Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental-Highly Recommended	Hospital Discharge	False	Stroke	Stroke
F1163-C58831	C58831	Stroke initial residence or discharge destination other text	The free-text field related to 'Stroke initial residence or discharge destination type' specifying other text. Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1159-C14199	C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke
F1162-C14226	C14226	Stroke causative classification standard sub type	Ischemic Stroke Subtype based on The Causative Classification System's - standard causative subtypes	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1203-C13465	C13465	Stroke Adjudication Worksheet date	Date of hospital admission or outpatient visit when the stroke event was evaluated	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C13472	C13472	Stroke Adjudication Worksheet - WHO definition indicator	The indicator of whether the event is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C13466	C13466	Stroke Adjudication Worksheet - type	Whether the participant/subject presented with neurologic symptoms	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C13474	C13474	Stroke Adjudication Worksheet - TIA indicator	The indicator whether this event a transient ischemic attack (TIA)	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C13468	C13468	Stroke Adjudication Worksheet - symptom duration	How long the symptom(s) experienced around the time of the stroke event lasted	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C13476	C13476	Stroke Adjudication Worksheet - stroke TIA symptoms type	The type of symptoms/conditions that were present and relevant for ischemic stroke subtype	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C13475	C13475	Stroke Adjudication Worksheet - stroke TIA sub type	The type of stroke or transient ischemic attack (TIA) subtype	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C13478	C13478	Stroke Adjudication Worksheet - stroke TIA other symptoms type	The type of other identified cause(s) of ischemic stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1203-C18885	C18885	Stroke Adjudication Worksheet - stroke TIA other symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA other symptoms type' specifying other text. The type of other identified cause(s) of ischemic stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.