CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1154-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1169-C58719	C58719	Tobacco not applicable last year indicator	Indicates if the participant/subject used no tobacco products within the past year	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58718	C58718	Tobacco last consumed date and time	Date (and time, if applicable and known) the participant/subject last used tobacco	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1154-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58940	C58940	Tobacco cigarette use stopped age value	Age in years when participant/subject stopped using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58941	C58941	Tobacco cigarette use stopped age not applicable status	Status indicating that age stopped cigarette use does not apply to the subject/participant, as they are still using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58939	C58939	Tobacco cigarette use started age value	Age in years when participant/subject started using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1180-C58788	C58788	Thrombectomy middle cerebral artery segment anatomic site	Anatomic site of the segment(s) of the middle cerebral artery (MCA) where a thrombectomy was received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58787	C58787	Thrombectomy artery anatomic site	Artery anatomic site(s) where a thrombectomy was received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1182-C05134	C05134	Therapy rehabilitation start date time	Date (and time, if applicable and known) on which the therapy or rehabilitation started	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C21667	C21667	Therapy rehabilitation ICD 10 CM code	ICD-10-CM code that describes the therapy or rehabilitation received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1157-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1182-C58876	C58876	Therapy or rehabilitation session week frequency	Frequency of therapy or rehabilitation sessions (number of session per week) the participant/subject has been part of	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58875	C58875	Therapy or rehabilitation received status other text	The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C14286	C14286	Therapy or rehabilitation received status	If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1157-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1182-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58878	C58878	Therapy or rehabilitation duration	Duration in weeks of therapy or rehabilitation services the participant/subject received	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C14285	C14285	Therapy or rehabilitation assessment indicator	Indicates if there is documentation that the participant/subject was assessed for rehabilitation services. Rehabilitation is a treatment or treatments designed to facilitate the process of recovery from injury, illness, or disease to as normal a condition as possible	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1949-C54094	C54094	Test assessment type	Type of test procedure or assessment administered	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1165-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1165-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.