CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 601 - 625 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Stroke Stroke
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Vessel Imaging Angiography False Stroke Stroke
C14191 Last known to be well date and time

The date and time at which the patient was last known to be without the signs and symptoms of the current stroke or at his or her prior baseline. This element captures the date and time for last known well that is determined to be the most accurate after all the data have been evaluated and additional witnesses interviewed (if applicable)

 Supplemental-Highly Recommended Hospital Arrival/Admission False Stroke Stroke
C00026 Language spoken Fluent text

Text for each language that the participant/subject speaks fluently

 Supplemental Demographics False Stroke Stroke
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

 Supplemental Demographics False Stroke Stroke
C58757 Lab test unit type

Indicator of whether United States Customary Units (Standard) or International Standard of Units (SI) were used in the laboratory test results

 Supplemental Laboratory Tests False Stroke Stroke
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests False Stroke Stroke
C01706 Lab test result text

Result of the laboratory test

 Supplemental Laboratory Tests False Stroke Stroke
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Supplemental Laboratory Tests False Stroke Stroke
C58756 Lab test result standard unit of measure

Unit of measure for the laboratory test result from a standardized list

 Supplemental Laboratory Tests False Stroke Stroke
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

 Supplemental Laboratory Tests False Stroke Stroke
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests False Stroke Stroke
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests False Stroke Stroke
C58721 Lab specimen type other text

The free-text field related to 'Lab specimen type' specifying other text

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C01712 Lab specimen type

Type of specimen collected for the laboratory test

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental Laboratory Tests False Stroke Stroke
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

 Supplemental Laboratory Tests False Stroke Stroke
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

 Supplemental Laboratory Tests False Stroke Stroke
C13231 King's Outcome Scale for Childhood Head Injury (KOSCHI) - prognosis category

The category that best describes the child's prognosis by the King's Outcome Scale for Childhood Head Injury (KOSCHI), which is a specific pediatric adaptation of the original adult Glasgow Outcome Scale (GOS)

 Supplemental King's Outcome Scale for Childhood Head Injury (KOSCHI) False Stroke Stroke
C14399 IV tPA not started reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
C18927 IV tPA not started other text

The free-text field related to 'IV tPA not started reason' specifying other text. If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
Displaying 601 - 625 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.