CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13518 Upper limb tone findings result

Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C54921 Unruptured intracranial aneurysm treatment repair score

Score in favor of repair on the unruptured intracranial aneurysm (UIA) treatment score model

Supplemental Unruptured Intracranial Aneurysm Management Stroke Stroke
C54917 Unruptured intracranial aneurysm treatment reason

Reason for treatment of unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C54922 Unruptured intracranial aneurysm treatment management score

Score in favor of management on the unruptured intracranial aneurysm (UIA) treatment score model

Supplemental Unruptured Intracranial Aneurysm Management Stroke Stroke
C54920 Unruptured intracranial aneurysm rupture risk PHASES score

Score on the PHASES scale for the risk of rupture of unruptured intracranial aneurysm (UIA)

Supplemental Unruptured Intracranial Aneurysm Management Stroke Stroke
C54916 Unruptured intracranial aneurysm observation reason

Reason for observation only of unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C54915 Unruptured intracranial aneurysm management plan initial status

Status of initial management plan for unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C54919 Unruptured intracranial aneurysm management noncompliance text

The free-text field related to 'Unruptured intracranial aneurysm management compliance indicator' specifying noncompliance

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C54918 Unruptured intracranial aneurysm management compliance indicator

Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C13852 Tumor present indicator

Indicates if tumor present

Supplemental Parenchymal Imaging Stroke Stroke
C13853 Tumor anatomic site

Specifies location of tumor

Supplemental Parenchymal Imaging Stroke Stroke
C14225 Trial of ORG 10172 in Acute Stroke Treatment (TOAST) - ischemic stroke sub type

Ischemic Stroke Subtype based on the Trial of ORG 10172 in Acute Stroke Treatment (TOAST) Classification System

Supplemental Stroke Types and Subtypes Stroke Stroke
C02486 Traumatic aneurysm volume measurement

Measured volume of the traumatic aneurysm in mm (calculated from length of involved vessel)

Supplemental Vessel Imaging Angiography Stroke Stroke
C02484 Traumatic aneurysm status

Status of false aneurysmal outpouching of an artery due to mechanical disruption of the entire vessel wall with extravasation of blood into a confined soft-tissue space

Supplemental Vessel Imaging Angiography Stroke Stroke
C02483 Traumatic aneurysm findings type

Further describes the traumatic aneurysm

Supplemental Vessel Imaging Angiography Stroke Stroke
C58903 Traumatic aneurysm anatomic site other text

The free-text field related to 'Traumatic aneurysm anatomic site' specifying other text. Describes why the imaging study was performed

Supplemental Vessel Imaging Angiography Stroke Stroke
C02485 Traumatic aneurysm anatomic site

Anatomic site of the traumatic aneurysm

Supplemental Vessel Imaging Angiography Stroke Stroke
C54097 Trail Making Test (TMT)- Part A image used source

Source of Part A image used, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58755 Toxicology screen other text

The free-text field related to 'Toxicology Screen' specifying other text

Supplemental Laboratory Tests Stroke Stroke
C22608 Total rehabilitation session count

The total number of rehabilitation sessions the participant/subject has been part of

Supplemental Rehabilitation Therapies Stroke Stroke
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Stroke Stroke
C55953 Tobacco use stopped age not applicable status

Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco

Supplemental Behavioral History Stroke Stroke
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Stroke Stroke
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C00719 Tobacco product used type

Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.