CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2032-C07436	C07436	Patient Health Questionnaire (PHQ) - Feeling failure score	Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F2032-C07441	C07441	Patient Health Questionnaire (PHQ) - Difficulty performing scale	The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F2032-C07431	C07431	Patient Health Questionnaire (PHQ) - Depressed score	Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F2032-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F2032-C07439	C07439	Patient Health Questionnaire (PHQ) - Better dead thought score	Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F2032-C07435	C07435	Patient Health Questionnaire (PHQ) - Abnormal diet score	Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1165-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs	False	Stroke	Stroke
F1155-C11063	C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1164-C58817	C58817	Parietal lobe function status	Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F2827-C54732	C54732	Parent artery proximal aneurysm diameter measurement	Diameter of the parent artery proximal to the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2827-C54733	C54733	Parent artery distal aneurysm diameter measurement	Diameter of the parent artery distal to the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1151-C19482	C19482	Paid work hour week count	The number of hours per week in paid work	Exploratory	Social Status	False	Stroke	Stroke
F1165-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1162-C14236	C14236	Oxfordshire Community Stroke Project (OCSP) - subtype category	Oxfordshire Community Stroke Project (OCSP) Subtype Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58844	C58844	Other findings text	The free-text field to specify other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1152-C19174	C19174	Other cardiac disorder type	Type of other cardiac disorder	Supplemental	Medical History	False	Stroke	Stroke
F1152-C58354	C58354	Other cancer type text	Text of type of other cancer(s) that the subject/participant has ever been diagnosed with	Exploratory	Medical History	False	Stroke	Stroke
F1180-C58799	C58799	Osmotic therapy type	Type of osmotic therapy received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1164-C13515	C13515	Orientation findings result	Assess orientation using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1162-C14248	C14248	Ogilvy subarachnoid hemorrhage grade	Ogilvy comprehensive grading system for classifying severity of SAH. In the system, 1 point is assigned for Hunt and Hess Grade 4 or 5, Fisher Scale score of 3 or 4, aneurysm size greater than 10 mm, patient age older than 50 years, and if the lesion is a giant (>= 25 mm) posterior circulation lesion. By adding the total points, the 5-point grading system is obtained	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1151-C19260	C19260	Occupation secondary status	The status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F2824-C58728	C58728	Occupation secondary prior event status	The status indicating the participant's/subject's secondary occupational status prior to the event	Supplemental	Return to Work	False	Stroke	Stroke
F2824-C58729	C58729	Occupation secondary prior event other status text	The free-text field to capture other status indicating the participant's/subject's secondary occupational status prior to the event	Supplemental	Return to Work	False	Stroke	Stroke
F1151-C19262	C19262	Occupation secondary other status text	The free-text field to capture other status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F2824-C58733	C58733	Occupation secondary after event status	The status indicating the participant's/subject's secondary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.