CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 351 - 375 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58824 Pregnancy or delivery risk factor maternal infection text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying maternal infection(s). Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11067 Pregnancy or delivery risk factor indicator

Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C58821 Pregnancy or delivery risk factor illness other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other illness text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C58823 Pregnancy or delivery risk factor fetal abnormal recognize in utero text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C14151 Pregnancy medical terminations count

Number of medical terminations (abortions)

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C15624 Pregnancy indicator

Indicates if the participant/subject is currently pregnant

 Supplemental-Highly Recommended Medical History False Stroke Stroke
C59009 Pregnancy current status

Status of the participant/subject's pregnancy currently

 Supplemental Medical History False Stroke Stroke
C58805 Pre-hospital stroke screen tool type

The stroke screen tool used to determine stroke status by EMS personnel

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58807 Pre-hospital stroke screen tool outcome status

The outcome status of the pre-hospital stroke screen used

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58806 Pre-hospital stroke screen tool other text

The free-text field related to 'Pre-hospital stroke screen tool' specifying other text. Source of the data provided on the case report form

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14207 Pre-hospital stroke identification screen indicator

Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58809 Pre-hospital severity scale type other text

The free-text field related to "Pre-hospital severity scale type" specifying other text

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58808 Pre-hospital severity scale type

The stroke severity scale used to determine stroke severity before hospital intake

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58811 Pre-hospital severity scale total score

The total score of the severity scale, if completed

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58812 Pre-hospital severity scale not documented status

Indicates if a severity scale was not documented

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C14208 Pre-hospital neurological impairment scale indicator

Whether a pre-hospital neurologic impairment scale screen was documented by EMS personnel. Pre-hospital neurologic impairment scales are defined as published validated scales or those required by state EMS agencies (e.g., GCS for suspected hemorrhagic stroke or any stroke with impaired consciousness, Los Angeles Motor Scale, etc.)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58810 Pre-hospital large vessel occlusion indicator

Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C54997 Potency enhancing drug former use age end value

Age in years at which the subject/participant stopped taking the specified potency-enhancing drug

 Exploratory Prior and Concomitant Medications False Stroke Stroke
C54994 Potency enhancing drug current former use type

Type of potency-enhancing drug formerly or currently taken by the subject/participant

 Exploratory Prior and Concomitant Medications False Stroke Stroke
C54995 Potency enhancing drug current former use duration

Duration in months for which the subject/participant took or has taken the specified potency-enhancing drug

 Exploratory Prior and Concomitant Medications False Stroke Stroke
C54996 Potency enhancing drug current former use age start value

Age in years at which the subject/participant began taking the specified former or current potency-enhancing drug

 Exploratory Prior and Concomitant Medications False Stroke Stroke
C59010 Postpartum period current status

Status of the participant/subject in the postpartum period currently

 Supplemental Medical History False Stroke Stroke
C15629 Postpartum indicator

Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy

 Supplemental-Highly Recommended Medical History False Stroke Stroke
C15630 Postpartum day week value

Number of days/weeks the participant/subject has been postpartum

 Supplemental Medical History False Stroke Stroke
C58849 Physical activity increase recommendation indicator

Indicates if recommendations to increase physical activity were provided at discharge. The intervention can be education, discussion, an individualized plan, referral to a structured program or another intervention

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
Displaying 351 - 375 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.