CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54258 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval percentage value

Confidence interval percentage value, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C54263 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval lower bound value

Confidence interval lower bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C54253 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C54282 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C54280 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus language difference score

Difference score calculated as a subtraction of Language index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C54281 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C54259 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Alpha level value

Confidence interval alpha level, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C58945 Regular moderate intense aerobic exercise physical activity indicator

Indicator related to whether or not the participant/subject participates in regular aerobic exercise (moderate intensity physical activity). Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously

 Supplemental Behavioral History False Stroke Stroke
C58946 Regular moderate intense aerobic exercise physical activity days week number

Number of days per typical week that the participant/subject engages in at least moderate-intensity aerobic exercise physical activities. Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously

 Supplemental Behavioral History False Stroke Stroke
C58860 Recreational prescription drug abuse discontinue intervention type

If the participant/subject received counseling to discontinue recreational or prescription drug abuse, describes the type(s) of interventions received

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C58861 Recreational prescription drug abuse discontinue intervention other text

The free-text field related to 'Recreational prescription drug abuse discontinue intervention type' specifying other text. If the participant/subject received counseling to discontinue recreational or prescription drug abuse, describes the type(s) of interventions received

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C58859 Recreational prescription drug abuse discontinue counsel indicator

Indicates if counseling to discontinue recreational or prescription drug abuse was provided at discharge. The intervention can be education, discussion, or referral to a rehabilitation program, use of an alternative treatment, or another intervention

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

 Supplemental Demographics False Stroke Stroke
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

 Supplemental Demographics False Stroke Stroke
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core Demographics False Stroke Stroke
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False Stroke Stroke
C58783 Race expanded paternal category

Category of race(s) or region(s) the participant/subject's father most closely identifies with

 Exploratory Demographics False Stroke Stroke
C58782 Race expanded maternal category

Category of race(s) or region(s) the participant/subject's mother most closely identifies with

 Exploratory Demographics False Stroke Stroke
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

 Exploratory Demographics False Stroke Stroke
C13890 Qureshi angiographic occlusions category

The score based on scheme that categorizes patients with ischemic stroke based on findings observed on initial angiography (the Qureshi angiographic occlusions scale score)

 Supplemental Vessel Imaging Angiography False Stroke Stroke
C14540 Pulmonary artery wedge pressure measurement

Pulmonary artery wedge pressure (PAWP) or pulmonary capillary wedge pressure (PCWP) is the intravascular pressure as measured by a catheter wedged into the distal pulmonary artery. It is used to measure indirectly the mean left atrial pressure

 Supplemental Vital Signs False Stroke Stroke
C07378 PTSD Checklist Civilian (PCL-C) - Very Upset indicator

Indicator of whether the subject experiences feeling very upset when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C07426 PTSD Checklist Civilian (PCL-C) - Total score

A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C07380 PTSD Checklist Civilian (PCL-C) - Thinking about indicator

Indicator of whether the subject experiences avoiding thinking about or talking about a stressful experience from the past or avoiding having feelings related to it, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C07390 PTSD Checklist Civilian (PCL-C) - Super alert indicator

Indicator of whether the subject experiences being "super-alert" or watchful or on guard, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
Displaying 301 - 325 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.