CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14020 Sickle cell disease vessel anatomic site

Indicates sickle cell vessel

Supplemental Vessel Imaging Transcranial Stroke Stroke
C18901 Sickle cell disease vessel anatomic other text

The free-text field related to 'Sickle cell disease vessel anatomic site' specifying other text. Indicates sickle cell vessel

Supplemental Vessel Imaging Transcranial Stroke Stroke
C14023 Sickle cell disease diagnosis result

Indicates sickle cell diagnosis result

Supplemental Vessel Imaging Transcranial Stroke Stroke
C14021 Sickle cell disease blood flow velocity measurement

The velocity measurement blood flow relative to sickle cell disease

Supplemental Vessel Imaging Transcranial Stroke Stroke
C52699 Sickle cell anemia blood transfusion treatment indicator

The indicator related to whether blood transfusions are used for treatment for sickle cell anemia

Supplemental Medical History Stroke Stroke
C58743 Shipping conditions type other text

The free-text field related to other shipping conditions type

Supplemental Biospecimen Collection and Processing Stroke Stroke
C58742 Shipping conditions type

Indicate the specimen shipping conditions

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C14260 Sebire-International Pediatric Stroke Study (IPSS) - sub type

The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C11086 School placement type

The description of the type of education the participant/subject receives with details of being with or without assistance

Supplemental Prior Functional Status Stroke Stroke
C18821 School placement other text

The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance

Supplemental Prior Functional Status Stroke Stroke
C01557 Respiratory support type

Type of respiratory support participant/subject received

Supplemental Vital Signs Stroke Stroke
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C01551 Respiration type

Type of respiration.

Supplemental Vital Signs Stroke Stroke
C14284 Resource Utilization Group Version IV (RUG IV) - alpha-numeric code

Indicates the Resource Utilization Group Version IV (RUG IV). Medicare pays skilled nursing facilities (SNFs) under a Prospective Payment System (PPS). PPS payments are per diem rates based on the patient's condition as determined by classification into a specific Resource Utilization Group (RUG). This classification is done by the use of a clinical assessment tool, the Minimum Data Set (MDS) and is required to be performed periodically according to an established schedule for purposes of Medicare payment. Each MDS represents the patient's clinical status based on an assessment reference date and established look back periods for the covered days associated with that MDS

Supplemental Rehabilitation Therapies Stroke Stroke
C04814 Residence type

Type of residence where the participant/subject is currently living

Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C18747 Residence other text

The free-text field related to 'Residence type' specifying other text. Type of residence where the participant/subject is currently living

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C58279 Residence current occupy duration text

Text field for indicating the duration for which the subject/participant has occupied his/her current residence

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C54279 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54277 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus language difference score

Difference score calculated as a subtraction of Language index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54278 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54276 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score

Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54268 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score

Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54265 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Subtest type

Subtest type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54256 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Recall Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54262 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value

Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
Displaying 251 - 275 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.