CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1150-C10677	C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Demographics	False	Stroke	Stroke
F1162-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2824-C54923	C54923	Workload before event rate	Rate in hours per week of the subject/participant's workload prior to the event	Supplemental	Return to Work	False	Stroke	Stroke
F2824-C54926	C54926	Workload after event rate	Rate in hours per week of the subject/participant's workload subsequent to the event	Supplemental	Return to Work	False	Stroke	Stroke
F2824-C54924	C54924	Work responsibility level previous resume indicator	Indicator of whether the subject/participant has resumed their previous level of responsibility at work	Supplemental	Return to Work	False	Stroke	Stroke
F2824-C54925	C54925	Work responsibility level previous not resume reason	Reason that the subject/participant has not resumed their previous level of responsibility at work	Supplemental	Return to Work	False	Stroke	Stroke
F1165-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1165-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1181-C58848	C58848	Weight loss intervention type	If the participant/subject received counseling for weight loss, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58847	C58847	Weight loss counsel indicator	Indicates if weight loss counseling was provided at discharge. The intervention can be education, an individualized plan, or referral to a dietitian or structured program	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1174-C54761	C54761	Wall opposition stent flow diverter quality grade	Grade of wall opposition quality for stents or flow diverters	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1197-C13190	C13190	Walking time duration	Time in seconds to complete the central 4 meters of a 6 meter line at a comfortable walking pace	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke
F1197-C13191	C13191	Walking speed value	Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke
F1165-C14464	C14464	Waist-hip ratio value	A measurement of the ratio of the body circumference at the level of the hips and the level of the waist	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14457	C14457	Waist circumference unit of measure	Units used to measure the waist circumference	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Stroke	Stroke
F2838-C14035	C14035	VMR response result	Indicates vasomotor response (VMR) response result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2822-C04807	C04807	Vital status	Status of participant/subject as alive or dead	Core	Death	False	Stroke	Stroke
F1165-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Stroke	Stroke
F2828-C21109	C21109	Visit assessment complete type	Type of assessment completed during visit	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F2826-C54884	C54884	Vessel repair anatomic site	Anatomic site of the vessel that was repaired	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2826-C54906	C54906	Vessel occlude temporary surgery procedure total duration	Total duration of all temporary vessel occlusions during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2826-C54905	C54905	Vessel occlude temporary surgery procedure maximum duration	Maximum duration of temporary vessel occlusion during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2826-C54903	C54903	Vessel occlude temporary surgery procedure indicator	Indicator of whether any blood vessels were temporarily occluded during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2826-C54904	C54904	Vessel occlude temporary surgery procedure count	Count of blood vessels that were temporarily occluded during surgery or other procedure	Exploratory	SAH Surgical/Procedural Interventions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.