CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 1542
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14263 Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - primary chronic sub type

Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic - patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy

Supplemental Stroke Types and Subtypes Stroke Stroke
C14261 Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - standard primary acute sub type

Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: acute - all patients with defined childhood arterial ischemic stroke will be classified into a single acute primary category, at the time of initial diagnosis (within 1 month of presentation)

Supplemental Stroke Types and Subtypes Stroke Stroke
C14257 Childhood stroke type

Indicates the type of clinical stroke suffered by the child

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58894 Clinical stroke time based Intracerebral hemorrhage laterality type

Indicate the laterality of the intracerebral hemorrhage

Supplemental Stroke Types and Subtypes Stroke Stroke
C58893 Clinical stroke time based ischemic stroke laterality type

Indicate the laterality of the ischemic stroke

Supplemental Stroke Types and Subtypes Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C14221 Clinical stroke time-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58896 Clinical stroke tissue based Intracerebral hemorrhage laterality type

Indicate the laterality of the intracerebral hemorrhage

Supplemental Stroke Types and Subtypes Stroke Stroke
C58895 Clinical stroke tissue based ischemic stroke laterality type

Indicate the laterality of the ischemic stroke

Supplemental Stroke Types and Subtypes Stroke Stroke
C14220 Clinical stroke tissue-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C14222 Clinical stroke tissue-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using tissue status to distinguish between ischemic stroke and TIA

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C54990 Cocaine expose year prior unruptured intracranial aneurysm presentation indicator

Indicator of whether the subject/participant was exposed to cocaine in the year prior to clinical presentation of unruptured intracranial aneurysm (UIA)

Supplemental Prior and Concomitant Medications Stroke Stroke
C54993 Cocaine exposure age end value

Age in years at which the subject/participant's exposure to cocaine ended

Exploratory Prior and Concomitant Medications Stroke Stroke
C54992 Cocaine exposure age start value

Age in years at which the subject/participant began exposure to cocaine

Supplemental Prior and Concomitant Medications Stroke Stroke
C54991 Cocaine use duration

Duration in months for which the subject/participant took or has taken cocaine

Supplemental Prior and Concomitant Medications Stroke Stroke
C58720 Collection time mortality status indicator

Indicate whether the participant/subject is living or deceased at the time of specimen collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C14280 Comfort care earliest documentation timepoint type

Timepoint of the earliest documentation of comfort measures only

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C14279 Comfort care indicator

Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C18912 Comfort care measure other text

The free-text field related to 'Comfort care measure type' specifying other text. Describes the types of comfort care the participant/ subject received

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C14281 Comfort care measure type

Describes the types of comfort care the participant/ subject received

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Stroop Test Stroke Stroke
C14218 Commission on Accreditation of Rehabilitation Facilities (CARF) - destination indicator

Indicates if the discharge destination is a rehabilitation center accredited by the Commission on Accreditation of Rehabilitation Facilities (CARF)

Supplemental Hospital Discharge Stroke Stroke
C54897 Complication surgery procedure aneurysm treatment type

Type of complication which occurred during surgery or other procedure to treat aneurysm

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C13883 Computer tomography (CT) angiography type

The type of computer tomography angiography being performed

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C13883 Computer tomography (CT) angiography type

The type of computer tomography angiography being performed

Supplemental Vessel Imaging Angiography Stroke Stroke
Displaying 226 - 250 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.