CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2828-C54279	C54279	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1158-C58279	C58279	Residence current occupy duration text	Text field for indicating the duration for which the subject/participant has occupied his/her current residence	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C18747	C18747	Residence other text	The free-text field related to 'Residence type' specifying other text. Type of residence where the participant/subject is currently living	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C04814	C04814	Residence type	Type of residence where the participant/subject is currently living	Supplemental-Highly Recommended	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1182-C14284	C14284	Resource Utilization Group Version IV (RUG IV) - alpha-numeric code	Indicates the Resource Utilization Group Version IV (RUG IV). Medicare pays skilled nursing facilities (SNFs) under a Prospective Payment System (PPS). PPS payments are per diem rates based on the patient's condition as determined by classification into a specific Resource Utilization Group (RUG). This classification is done by the use of a clinical assessment tool, the Minimum Data Set (MDS) and is required to be performed periodically according to an established schedule for purposes of Medicare payment. Each MDS represents the patient's clinical status based on an assessment reference date and established look back periods for the covered days associated with that MDS	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1165-C01551	C01551	Respiration type	Type of respiration.	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1165-C01557	C01557	Respiratory support type	Type of respiratory support participant/subject received	Supplemental	Vital Signs	False	Stroke	Stroke
F1157-C18821	C18821	School placement other text	The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1157-C11086	C11086	School placement type	The description of the type of education the participant/subject receives with details of being with or without assistance	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1162-C14260	C14260	Sebire-International Pediatric Stroke Study (IPSS) - sub type	The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1169-C58742	C58742	Shipping conditions type	Indicate the specimen shipping conditions	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58743	C58743	Shipping conditions type other text	The free-text field related to other shipping conditions type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1152-C52699	C52699	Sickle cell anemia blood transfusion treatment indicator	The indicator related to whether blood transfusions are used for treatment for sickle cell anemia	Supplemental	Medical History	False	Stroke	Stroke
F2838-C14021	C14021	Sickle cell disease blood flow velocity measurement	The velocity measurement blood flow relative to sickle cell disease	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C14023	C14023	Sickle cell disease diagnosis result	Indicates sickle cell diagnosis result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C18901	C18901	Sickle cell disease vessel anatomic other text	The free-text field related to 'Sickle cell disease vessel anatomic site' specifying other text. Indicates sickle cell vessel	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C14020	C14020	Sickle cell disease vessel anatomic site	Indicates sickle cell vessel	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1152-C52703	C52703	Sleep apnea type text	The free-text field related to the type of sleep apnea	Supplemental	Medical History	False	Stroke	Stroke
F1181-C14274	C14274	Smoking cessation treatment indicator	For patients who have smoked at least one cigarette within the past year (Joint Commission definition) or who vape, indicates whether the patient received counseling to stop smoking/vaping or smoking cessation advice during the hospitalization as documented in progress notes or physician orders at discharge or admissions	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C14275	C14275	Smoking cessation treatment type	If the participant/subject received anti-smoking/ smoking cessation treatment, describes the type(s) of treatment received. The interventions can be directed at the caregiver if the participant/subject is unable to comprehend	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1150-C14124	C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Supplemental	Demographics	False	Stroke	Stroke
F1162-C58925	C58925	Sophia chance findings during routine imaging other text	The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14626	C14626	Sophia delivery mode type	Mother's mode of delivery of the neonate. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C19077	C19077	Sophia imaging stroke composite diagnosis method other text	The free-text field related to 'Imaging stroke composite diagnosis method type' specifying other text. Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.