CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1178-C58960	C58960	Antithrombotic therapy not prescribed serious side effect text	The free-text field related to 'Antithrombotic therapy not prescribed reason', specifying serious side effect to medication text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1152-C52623	C52623	Aortic thoracic aneurysm specify text	The free-text field related to the type of aortic or thoracic aneurysm	Supplemental	Medical History	False	Stroke	Stroke
F1155-C00724	C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1155-C12604	C12604	APGAR one minute score	Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1155-C00723	C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2827-C54755	C54755	Arch injection indicator	Indicator of whether an arch injection was done for angiography	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1174-C13892	C13892	Arterial occlusion lesion (AOL) recanalization score	The score as related to recanalization of the primary arterial occlusive lesion (AOL) for DSA. The score as related to recanalization of the modified arterial occlusive lesion (mAOL) for CTA and MRA	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2838-C01559	C01559	Arterial partial pressure carbon dioxide value	Measurement of how much carbon dioxide is dissolved in the arterial blood and how well carbon dioxide is able to move out of the body (PaCO2)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13851	C13851	Arteriovenous malformation anatomic site	Specifies Location of arteriovenous malformation	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13850	C13850	Arteriovenous malformation present indicator	Indicates if arteriovenous malformation is present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Stroke	Stroke
F1949-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2826-C54896	C54896	Assessment surgery procedure vessel patency aneurysm occlusion method type	Type of method used to for assessment of vessel patency or aneurysm occlusion during surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1182-C58882	C58882	Assistive device other text	The free-text field related to 'Assistive device type' specifying other text. Type for all assistive devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C58911	C58911	Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type	Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14230	C14230	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - atherothrombotic grade	The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14232	C14232	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - cardioembolic grade	The grade of cardioembolism, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of cardiac source (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14234	C14234	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - diagnostic evidence level type	Levels of diagnostic evidence for the ASCO Grades	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14233	C14233	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - other grade	The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of other cause (O)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14231	C14231	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - small vessel grade	The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of small vessel disease (S)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14235	C14235	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - sub type	Stroke Subtype as defined by the A-S-C-O pattern (e.g., A1-S3-C1-O3)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58904	C58904	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - atherothrombosis grade	The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58908	C58908	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - cardioembolic grade	The grade of cardiac pathology, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of cardiac pathology (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.