CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1155-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1164-C13517	C13517	Hand function findings result	Assess hand function on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C13516	C13516	Hand strength findings result	Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1165-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	Stroke	Stroke
F1152-C52617	C52617	Head trauma result type	The element related to the result of head trauma	Supplemental	Medical History	False	Stroke	Stroke
F1165-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Core	Vital Signs	False	Stroke	Stroke
F1165-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1165-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1171-C13827	C13827	Hematoma chronic count	Indicates number of chronic hematomas if present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13826	C13826	Hematoma chronic indicator	Indicates presence of Chronic hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13817	C13817	Hematoma deep region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a deep region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2826-C54902	C54902	Hematoma evacuate surgery procedure indicator	Indicator of whether surgery or other procedure was performed to evacuate a hematoma	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1171-C13815	C13815	Hematoma lobar region anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in a lobar region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13816	C13816	Hematoma lobar region epicenter anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in the lobar epicenter region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2838-C14052	C14052	Hemoglobin measurement	The measurement for hemoglobin	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13843	C13843	Hemorrhagic transformation imaging type	Describes imaging type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13842	C13842	Hemorrhagic transformation present indicator	Indicates presence of Hemorrhagic Transformation	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C58842	C58842	Herniation location type	Indicates herniation location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C58841	C58841	Herniation present indicator	Indicates if any herniation present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1181-C58856	C58856	High alcohol consumption avoid counsel indicator	Indicates if counseling to avoid high alcohol consumption was provided at discharge. The intervention can be education, discussion, or referral to a rehabilitation program	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58858	C58858	High alcohol consumption avoid intervention type	If the participant/subject received counseling to avoid high alcohol consumption, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.