CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C13806	Age-related white matter changes (ARWMC) scale - total score	The total score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C01500	Airway treatment type	Type of treatment or procedures the participant/subject received to support airway/ breathing	Supplemental	Vital Signs	False	Stroke	Stroke
C13776	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) territory segment score	The Alberta Stroke Program Early CT score (ASPECTS) score for the middle cerebral artery (MCA) territory segment assessed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13775	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) territory segment type	The type of middle cerebral artery (MCA) territory segment assessed for Alberta Stroke Program Early CT score (ASPECTS) score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13785	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) total score	The total score for the Alberta Stroke Program Early CT score (ASPECTS) middle cerebral artery (MCA)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C58944	Alcohol 30 day use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Stroke	Stroke
C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Stroke	Stroke
C10823	Alcohol last consumed date and time	Date (and time, if applicable and known) the participant/subject last drank alcohol	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Stroke	Stroke
C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
C55966	Alcohol use stopped age not applicable status	Status indicating that age quit drinking does not apply to the subject/participant, as they are still ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
C58717	Alcoholic drink not applicable last year indicator	Indicates if the participant/subject consumed no alcohol within the past year	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
C14639	Ambulatory status	Status that reflects the participant's/subject's ability to walk	Core	Prior Functional Status	False	Stroke	Stroke
C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C54731	Aneurysm bottleneck factor value	Value of the bottleneck factor of the aneurysm being described, calculated as the largest width of the aneurysm divided by the largest width of the aneurysm neck	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C54737	Aneurysm calcification indicator	Indicator for the presence of evidence of calcification	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C54725	Aneurysm diameter maximum measurement	Measurement of the maximum diameter of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
C54740	Aneurysm followup shape type	Type of shape of the aneurysm at follow-up	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
C58813	Aneurysm formation de novo indicator	Indicator for the presence of de novo formation of aneurysm since last imaging	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.