CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C08526	36-item Short Form Health Survey (SF-36) - Times calm peaceful score	Score of times feeling calm and peaceful during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08525	36-item Short Form Health Survey (SF-36) - Times down score	Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08528	36-item Short Form Health Survey (SF-36) - Times downhearted blue score	Score of times feeling downhearted and blue during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08527	36-item Short Form Health Survey (SF-36) - Times energy score	Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08530	36-item Short Form Health Survey (SF-36) - Times happy score	Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08532	36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score	Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08524	36-item Short Form Health Survey (SF-36) - Times nervous score	Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08523	36-item Short Form Health Survey (SF-36) - Times pep score	Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08531	36-item Short Form Health Survey (SF-36) - Times tired score	Score of times feeling tired during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08529	36-item Short Form Health Survey (SF-36) - Times worn out score	Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C08519	36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator	Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Stroke	Stroke
C13855	Abscess anatomic site	The free-text field to specify the location of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13854	Abscess present indicator	The indicator for presence of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C58933	Acquired heart disease indicator	The indicator related to whether the participant/subject has acquired heart disease	Supplemental	Medical History	False	Stroke	Stroke
C13811	Acute hematoma present indicator	Indicates presence of acute hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14224	Acute ischemic cerebrovascular syndrome (AICS) - stroke sub type	Ischemic stroke subtype based on the acute ischemic cerebrovascular syndrome (AICS) classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C58883	Adjunctive treatment drool surgical procedure injection specify text	The free-text field related to 'Adjunctive treatment type' specifying the type of surgical procedure or injections for drooling text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C14288	Adjunctive treatment indicator	Indicates if any adjunctive treatments were or are being performed on the participant/subject to preserve or increase independence	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C18913	Adjunctive treatment other text	The free-text field related to 'Adjunctive treatment type' specifying other text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C13805	Age-related white matter changes (ARWMC) scale - basal ganglia score	The basal ganglia score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13801	Age-related white matter changes (ARWMC) scale - frontal score	The frontal score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13804	Age-related white matter changes (ARWMC) scale - infratentorial cerebellum score	The infratentorial/cerebellum score from the age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13802	Age-related white matter changes (ARWMC) scale - parieto-occipital score	The parieto-occipital score age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13803	Age-related white matter changes (ARWMC) scale - temporal score	The temporal score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.