CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C13855	Abscess anatomic site	The free-text field to specify the location of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13854	Abscess present indicator	The indicator for presence of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C58933	Acquired heart disease indicator	The indicator related to whether the participant/subject has acquired heart disease	Supplemental	Medical History	False	Stroke	Stroke
C13811	Acute hematoma present indicator	Indicates presence of acute hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14224	Acute ischemic cerebrovascular syndrome (AICS) - stroke sub type	Ischemic stroke subtype based on the acute ischemic cerebrovascular syndrome (AICS) classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C58883	Adjunctive treatment drool surgical procedure injection specify text	The free-text field related to 'Adjunctive treatment type' specifying the type of surgical procedure or injections for drooling text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C14288	Adjunctive treatment indicator	Indicates if any adjunctive treatments were or are being performed on the participant/subject to preserve or increase independence	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C18913	Adjunctive treatment other text	The free-text field related to 'Adjunctive treatment type' specifying other text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C13805	Age-related white matter changes (ARWMC) scale - basal ganglia score	The basal ganglia score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13801	Age-related white matter changes (ARWMC) scale - frontal score	The frontal score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13804	Age-related white matter changes (ARWMC) scale - infratentorial cerebellum score	The infratentorial/cerebellum score from the age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13802	Age-related white matter changes (ARWMC) scale - parieto-occipital score	The parieto-occipital score age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13803	Age-related white matter changes (ARWMC) scale - temporal score	The temporal score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13806	Age-related white matter changes (ARWMC) scale - total score	The total score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C01500	Airway treatment type	Type of treatment or procedures the participant/subject received to support airway/ breathing	Supplemental	Vital Signs	False	Stroke	Stroke
C13776	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) territory segment score	The Alberta Stroke Program Early CT score (ASPECTS) score for the middle cerebral artery (MCA) territory segment assessed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13775	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) territory segment type	The type of middle cerebral artery (MCA) territory segment assessed for Alberta Stroke Program Early CT score (ASPECTS) score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C13785	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) total score	The total score for the Alberta Stroke Program Early CT score (ASPECTS) middle cerebral artery (MCA)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C58944	Alcohol 30 day use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Stroke	Stroke
C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Stroke	Stroke
C10823	Alcohol last consumed date and time	Date (and time, if applicable and known) the participant/subject last drank alcohol	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.