CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1158-C58809	C58809	Pre-hospital severity scale type other text	The free-text field related to "Pre-hospital severity scale type" specifying other text	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C58808	C58808	Pre-hospital severity scale type	The stroke severity scale used to determine stroke severity before hospital intake	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C58807	C58807	Pre-hospital stroke screen tool outcome status	The outcome status of the pre-hospital stroke screen used	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C58806	C58806	Pre-hospital stroke screen tool other text	The free-text field related to 'Pre-hospital stroke screen tool' specifying other text. Source of the data provided on the case report form	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C58805	C58805	Pre-hospital stroke screen tool type	The stroke screen tool used to determine stroke status by EMS personnel	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C58804	C58804	Emergency Medical Services (EMS) service personnel highest level type	Highest level of emergency medical service (EMS) personnel that attended to the participant/subject provided	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1180-C58803	C58803	Stroke surgical operative preventive neurosurgical treatment other text	The free-text field related to 'Stroke surgical operative preventive treatment type' specifying neurosurgical/operative preventative treatment other text. Type of other neurosurgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58802	C58802	Stroke surgical operative preventive cardiac treatment text	The free-text field related to 'Stroke surgical operative preventive treatment type' specifying cardiac surgical/operative preventative treatment text. Type of cardiac surgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58801	C58801	Stroke surgical operative preventive treatment type	Type of surgical/operative preventative treatment the participant/ subject received or was evaluated and scheduled for as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58800	C58800	Stroke surgical operative preventive treatment indicator	Indicates whether or not the participant/ subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58799	C58799	Osmotic therapy type	Type of osmotic therapy received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58798	C58798	Increase intracranial pressure medical therapy type	Type of medical therapy received by the participant/subject for the treatment of increased intracranial pressure	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58797	C58797	Ventricular drain place other text	The free-text field related to 'Ventricular drain place type' specifying other text. Type of ventricular drainage placed	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58796	C58796	Ventricular drain place type	Type of ventricular drainage placed	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58795	C58795	Vertebral artery revascularization procedure other text	The free-text field related to 'Vertebral artery revascularization procedure type' specifying other text. Type of vertebral artery revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58794	C58794	Vertebral artery revascularization procedure type	Type of vertebral artery revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58793	C58793	Carotid revascularization procedure other text	The free-text field related to 'Carotid revascularization procedure type' specifying other text. Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58792	C58792	Carotid revascularization procedure type	Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58791	C58791	Bypass revascularization surgery type	Type of bypass/revascularization surgery received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58790	C58790	Intracranial revascularization procedure other text	The free-text field related to 'Intracranial revascularization procedure type' specifying other text. Type of intracranial revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58789	C58789	Intracranial revascularization procedure type	Type of intracranial revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58788	C58788	Thrombectomy middle cerebral artery segment anatomic site	Anatomic site of the segment(s) of the middle cerebral artery (MCA) where a thrombectomy was received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58787	C58787	Thrombectomy artery anatomic site	Artery anatomic site(s) where a thrombectomy was received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58786	C58786	Stroke surgical therapeutic procedure other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1180-C58785	C58785	Stroke neurosurgical procedure non vascular other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other non-vascular neurosurgical procedure text. Type of non-vascular neurosurgical procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.