CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C58834	C58834	Leukoaraiosis sequence specify text	Specify the leukoaraiosis sequence employed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C58833	C58833	Leukoaraiosis sequence type	Indicate the leukoaraiosis sequence type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C58832	C58832	Imaging chronic infarct count category	Indicates number of chronic infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C58831	C58831	Stroke initial residence or discharge destination other text	The free-text field related to 'Stroke initial residence or discharge destination type' specifying other text. Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1171-C58830	C58830	Imaging acute ischemic lesion volume sequence specify text	The free-text field related to 'Imaging acute ischemic lesion volume sequence type' specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C58829	C58829	Diagnosis principal discharge stroke TIA related ICD-10-CM code status	Status indicating if the principal or secondary ICD-10-CM diagnosis code is not Stroke/ TIA (transient ischemic attack) related	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1171-C58828	C58828	Imaging acute ischemic lesion volume sequence type	Indicates the imaging acute ischemic lesion volume sequence type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C58827	C58827	Hyperdense venous sinus or cortical vein specify text	Specify in text the hyperdense observations that were made	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C58826	C58826	Hyperdense artery specify text	Specify in text the hyperdense observations that were made	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1155-C58825	C58825	Intracranial aneurysm rupture delivery status	The element related to the time when the rupture of the brain aneurysm occurred, either before, during or after delivery	Exploratory	Pregnancy and Perinatal History	False	Stroke	Stroke
F1155-C58824	C58824	Pregnancy or delivery risk factor maternal infection text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying maternal infection(s). Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1155-C58823	C58823	Pregnancy or delivery risk factor fetal abnormal recognize in utero text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1171-C58822	C58822	Imaging acute infarcts count category	The number of acute infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1155-C58821	C58821	Pregnancy or delivery risk factor illness other text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying other illness text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1155-C58820	C58820	Pregnancy or delivery risk factor status	The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1164-C58819	C58819	Dizziness indicator	Indicator of whether the participant/subject experienced dizziness	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58818	C58818	Dysphagia status	Did the participant/subject have dysphagia (difficulty swallowing) identified at bedside assessment? The dysphagia screening should utilize a validated tool that incorporates a swallow assessment and an assessment of level of consciousness and neurological function	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58817	C58817	Parietal lobe function status	Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58816	C58816	Frontal lobe function status	Assess frontal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1172-C58815	C58815	Imaging perfusion computed tomography based identification penumbra method other text	The free-text field related to 'Imaging perfusion computed tomography based identification penumbra method type' specifying other text	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1172-C58814	C58814	Imaging magnetic resonance based identification penumbra method other text	The free-text field related to 'Imaging magnetic resonance based identification penumbra method type' specifying other text	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F2827-C58813	C58813	Aneurysm formation de novo indicator	Indicator for the presence of de novo formation of aneurysm since last imaging	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1158-C58812	C58812	Pre-hospital severity scale not documented status	Indicates if a severity scale was not documented	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C58811	C58811	Pre-hospital severity scale total score	The total score of the severity scale, if completed	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1158-C58810	C58810	Pre-hospital large vessel occlusion indicator	Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.