CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1182-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58878	C58878	Therapy or rehabilitation duration	Duration in weeks of therapy or rehabilitation services the participant/subject received	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58877	C58877	Inpatient therapy or rehabilitation location type	Type of inpatient location where the participant subject received therapy or rehabilitation services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58876	C58876	Therapy or rehabilitation session week frequency	Frequency of therapy or rehabilitation sessions (number of session per week) the participant/subject has been part of	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58875	C58875	Therapy or rehabilitation received status other text	The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1182-C58874	C58874	Location post-acute stroke discharge other text	The free-text field related to 'Location post-acute stroke discharge type' specifying other text. Indicates the participant's/subject's current location after discharge from the acute hospital for the index stroke/transient ischemic attack (TIA)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C58873	C58873	Blood collection method category	Indicate the method of blood collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1173-C58872	C58872	Intima media thickness (IMT) edge detection algorithm type	Indicates intima media thickness (IMT) edge detection algorithm type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58871	C58871	Imaging signal indicator	Indicates signal on the carotid ultrasound	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58870	C58870	Imaging plaque thickness unit of measure	The unit of measure for "Imaging plaque thickness measurement"	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58869	C58869	Imaging contrast agent name	The name of the imaging contrast agent used	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C58868	C58868	Imaging transient ischemic attack type	Indicates type of transient ischemic attack	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C58868	C58868	Imaging transient ischemic attack type	Indicates type of transient ischemic attack	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C58867	C58867	Imaging chronic stroke type	Indicates chronic stroke type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C58867	C58867	Imaging chronic stroke type	Indicates chronic stroke type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1181-C58866	C58866	Mental resilience stress management tool adopt intervention other text	The free-text field related to 'Mental resilience stress management tool adopt intervention type' specifying other text. If the participant/subject received counseling to adopt tools for mental resilience and stress management, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58865	C58865	Mental resilience stress management tool adopt intervention type	If the participant/subject received counseling to adopt tools for mental resilience and stress management, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58864	C58864	Mental resilience stress management tool adopt counsel indicator	Indicates if counseling to adopt tools for mental resilience and stress management was provided at discharge. The intervention can be discussion or another intervention	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58863	C58863	Contraceptive hormone replacement treatment intervention type	If the participant/subject received counseling related to contraceptive/hormone replacement treatment, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58862	C58862	Contraceptive hormone replacement treatment counsel indicator	Indicates if counseling relating to contraceptive/hormone replacement treatment was provided at discharge. The intervention can be discussion or use of alternate treatment or approaches	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58861	C58861	Recreational prescription drug abuse discontinue intervention other text	The free-text field related to 'Recreational prescription drug abuse discontinue intervention type' specifying other text. If the participant/subject received counseling to discontinue recreational or prescription drug abuse, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58860	C58860	Recreational prescription drug abuse discontinue intervention type	If the participant/subject received counseling to discontinue recreational or prescription drug abuse, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58859	C58859	Recreational prescription drug abuse discontinue counsel indicator	Indicates if counseling to discontinue recreational or prescription drug abuse was provided at discharge. The intervention can be education, discussion, or referral to a rehabilitation program, use of an alternative treatment, or another intervention	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1181-C58858	C58858	High alcohol consumption avoid intervention type	If the participant/subject received counseling to avoid high alcohol consumption, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.