CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58930 Hypertension treatment type

Type of treatment the participant/subject is receiving or has received for hypertension

 Supplemental Medical History False Stroke Stroke
C58929 Medical history carotid artery stenting recent date

Date of most recent carotid artery stenting performed on the participant/subject

 Exploratory Medical History False Stroke Stroke
C58928 Medical history carotid endarterectomy recent date

Date of most recent carotid endarterectomy performed on the participant/subject

 Exploratory Medical History False Stroke Stroke
C58927 Medical history hemorrhagic stroke recency rate

The element related to the recency of hemorrhagic strokes the participant/subject has had

 Supplemental Medical History False Stroke Stroke
C58926 Medical history hemorrhagic stroke range

The element related to the number of hemorrhagic strokes the participant/subject has had

 Exploratory Medical History False Stroke Stroke
C58925 Sophia chance findings during routine imaging other text

The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58924 Focal Cerebral Arteriopathy Severity Score (FCASS) - follow up sum score

Score related to the follow-up sum of the five individual arterial segment scores (without weighting) and the delta point (if applicable), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58923 Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code

The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58922 Focal Cerebral Arteriopathy Severity Score (FCASS) - baseline score

Score related to the baseline sum of the five individual arterial segment scores (without weighting), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58921 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58920 Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 2 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the M2 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58919 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58918 Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58917 Focal Cerebral Arteriopathy Severity Score (FCASS) - supraclinoid internal carotid artery score scale

The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58916 Vascular effects of Infection in Pediatric Stroke (VIPS) - focal cerebral arteriopathy type

Type of focal cerebral arteriopathy (FCA), as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58915 Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy secondary diagnosis subtype classification status

The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58914 Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy primary diagnosis subtype classification status

The status of arteriopathy primary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58913 Perinatal arterial ischemic stroke type

Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C58912 Embolic stroke of undetermined source (ESUS) - criteria category

The descriptive identification criteria categories used to identify Embolic Stroke of Undetermined Source (ESUS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58911 Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type

Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58910 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade

The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58909 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - other grade

The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of other cause (O)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58908 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - cardioembolic grade

The grade of cardiac pathology, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of cardiac pathology (C)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58907 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - small vessel grade

The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of small-vessel disease (S)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58906 Vasospasm resistive index value

Indicates vasospasm resistive Index (RI)

 Supplemental Vessel Imaging Transcranial False Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.