CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1178-C58955	C58955	Antihypertensive agent stroke discharge prescribe other text	The free-text field related to 'Antihypertensive agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58954	C58954	Antihypertensive agent stroke discharge prescribe type	Type(s) of antihypertensive agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58953	C58953	Antiplatelet agent stroke discharge prescribe other text	The free-text field related to 'Antiplatelet agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58952	C58952	Antiplatelet agent stroke discharge prescribe type	Type(s) of antiplatelet agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58951	C58951	Anticoagulant agent stroke discharge prescribe other text	The free-text field related to 'Anticoagulant agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58950	C58950	Anticoagulant agent stroke discharge prescribe type	Type(s) of anticoagulant agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58949	C58949	Medication stroke discharge prescribe category	Class(es) of medications the participant/subject was prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1153-C58948	C58948	Family history coronary artery disease (CAD) youngest age unknown status	Status indicating the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack, if there is a family history of coronary artery disease (CAD)	Supplemental	Family History	False	Stroke	Stroke
F1153-C58947	C58947	Family history stroke youngest age unknown status	Status indicating the youngest age an immediate family member (parent, sibling, child) suffered a stroke is unknown, if there is a family history of stroke	Supplemental	Family History	False	Stroke	Stroke
F1154-C58946	C58946	Regular moderate intense aerobic exercise physical activity days week number	Number of days per typical week that the participant/subject engages in at least moderate-intensity aerobic exercise physical activities. Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58945	C58945	Regular moderate intense aerobic exercise physical activity indicator	Indicator related to whether or not the participant/subject participates in regular aerobic exercise (moderate intensity physical activity). Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58944	C58944	Alcohol 30 day use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C58943	C58943	E-cigarette electronic vapor product use status	Status of participant/subject's use of e-cigarettes or other electronic vaping products	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58942	C58942	E-cigarette electronic vapor product use ever indicator	The indicator related to whether the participant/subject has ever used an e-cigarette or other electronic vaping product, even just one time, in their entire life	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58941	C58941	Tobacco cigarette use stopped age not applicable status	Status indicating that age stopped cigarette use does not apply to the subject/participant, as they are still using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58940	C58940	Tobacco cigarette use stopped age value	Age in years when participant/subject stopped using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58939	C58939	Tobacco cigarette use started age value	Age in years when participant/subject started using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C58938	C58938	Drug or substance illicit or recreational use other text	The free-text field related to 'Drug or substance illicit or recreational use category', specifying other text	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C58937	C58937	Drug or substance illicit or recreational use category	Category of illegal or recreational drugs or substances, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, in large amounts, or for recreational purposes	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C58936	C58936	Drug or substance current illicit or recreational use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1152-C58935	C58935	Facial segmental hemangioma PHACE syndrome indicator	The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58934	C58934	Chickenpox past twelve month indicator	The indicator related to whether the participant/subject has had chickenpox in the past 12 months	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58933	C58933	Acquired heart disease indicator	The indicator related to whether the participant/subject has acquired heart disease	Supplemental	Medical History	False	Stroke	Stroke
F1152-C58932	C58932	Menopause treatment type other text	The free-text field related to 'Menopause treatment type', specifying other text	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58931	C58931	Menopause treatment type	Type of treatment the participant/subject is receiving or has received for menopause	Exploratory	Medical History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.