CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58740 Specimen collection grossly bloody indicator

Indicate whether the specimen collection was grossly bloody

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58739 CSF/plasma simultaneous collection indicator

Indicate whether the CSF and plasma samples were collected simultaneously

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58738 CSF/serum simultaneous collection indicator

Indicate whether the CSF and serum samples were collected simultaneously

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58737 Blood collection tube number

Enter the number of collection tubes used

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58736 Needle gauge size type other text

The free-text field related to 'Needle gauge size type' specifying other text

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58735 Needle gauge size type

Indicate the needle gauge size

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58734 Occupation secondary after event other status text

The free-text field to capture other status indicating the participant's/subject's secondary occupational status after the event

 Supplemental Return to Work False Stroke Stroke
C58733 Occupation secondary after event status

The status indicating the participant's/subject's secondary occupational status after the event

 Supplemental Return to Work False Stroke Stroke
C58732 Occupation primary after event other status text

The free-text field to capture other status indicating the participant's/subject's primary occupational status after the event

 Supplemental Return to Work False Stroke Stroke
C58731 Occupation primary after event status

The status indicating the participant's/subject's primary occupational status after the event

 Supplemental Return to Work False Stroke Stroke
C58730 Occupation paid after event code

Code corresponding to type of paid occupation after the event as defined by the International Labor Organization/International Standard Classification of Occupations (ILO/ISCO)

 Supplemental Return to Work False Stroke Stroke
C58729 Occupation secondary prior event other status text

The free-text field to capture other status indicating the participant's/subject's secondary occupational status prior to the event

 Supplemental Return to Work False Stroke Stroke
C58728 Occupation secondary prior event status

The status indicating the participant's/subject's secondary occupational status prior to the event

 Supplemental Return to Work False Stroke Stroke
C58727 Occupation primary prior event other status text

The free-text field to capture other status indicating the participant's/subject's primary occupational status prior to the event

 Supplemental Return to Work False Stroke Stroke
C58726 Occupation primary prior event status

The status indicating the participant's/subject's primary occupational status prior to the event

 Supplemental Return to Work False Stroke Stroke
C58725 Occupation paid prior event code

Code corresponding to type of paid occupation prior to the event as defined by the International Labor Organization/International Standard Classification of Occupations (ILO/ISCO)

 Supplemental Return to Work False Stroke Stroke
C58724 Specimen hemolyzed indicator

Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58723 Blood collection method type other text

The free-text field related to 'Blood collection method type' specifying other text

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58722 Specimen collection position type

Indicate the position of the participant/subject during sample collection

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58721 Lab specimen type other text

The free-text field related to 'Lab specimen type' specifying other text

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58720 Collection time mortality status indicator

Indicate whether the participant/subject is living or deceased at the time of specimen collection

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58719 Tobacco not applicable last year indicator

Indicates if the participant/subject used no tobacco products within the past year

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58718 Tobacco last consumed date and time

Date (and time, if applicable and known) the participant/subject last used tobacco

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58717 Alcoholic drink not applicable last year indicator

Indicates if the participant/subject consumed no alcohol within the past year

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C58714 Death WHO definition indicator

The indicator of whether the death is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin

 Supplemental Death False Stroke Stroke
Displaying 251 - 275 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.