CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1451 - 1475 of 1543

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C58913	C58913	Perinatal arterial ischemic stroke type	Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58914	C58914	Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy primary diagnosis subtype classification status	The status of arteriopathy primary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58915	C58915	Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy secondary diagnosis subtype classification status	The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58916	C58916	Vascular effects of Infection in Pediatric Stroke (VIPS) - focal cerebral arteriopathy type	Type of focal cerebral arteriopathy (FCA), as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58917	C58917	Focal Cerebral Arteriopathy Severity Score (FCASS) - supraclinoid internal carotid artery score scale	The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58918	C58918	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58919	C58919	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58920	C58920	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 2 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M2 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58921	C58921	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58922	C58922	Focal Cerebral Arteriopathy Severity Score (FCASS) - baseline score	Score related to the baseline sum of the five individual arterial segment scores (without weighting), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58923	C58923	Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code	The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58924	C58924	Focal Cerebral Arteriopathy Severity Score (FCASS) - follow up sum score	Score related to the follow-up sum of the five individual arterial segment scores (without weighting) and the delta point (if applicable), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58925	C58925	Sophia chance findings during routine imaging other text	The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1152-C58926	C58926	Medical history hemorrhagic stroke range	The element related to the number of hemorrhagic strokes the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58927	C58927	Medical history hemorrhagic stroke recency rate	The element related to the recency of hemorrhagic strokes the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C58928	C58928	Medical history carotid endarterectomy recent date	Date of most recent carotid endarterectomy performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58929	C58929	Medical history carotid artery stenting recent date	Date of most recent carotid artery stenting performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58930	C58930	Hypertension treatment type	Type of treatment the participant/subject is receiving or has received for hypertension	Supplemental	Medical History	False	Stroke	Stroke
F1152-C58931	C58931	Menopause treatment type	Type of treatment the participant/subject is receiving or has received for menopause	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58932	C58932	Menopause treatment type other text	The free-text field related to 'Menopause treatment type', specifying other text	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58933	C58933	Acquired heart disease indicator	The indicator related to whether the participant/subject has acquired heart disease	Supplemental	Medical History	False	Stroke	Stroke
F1152-C58934	C58934	Chickenpox past twelve month indicator	The indicator related to whether the participant/subject has had chickenpox in the past 12 months	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58935	C58935	Facial segmental hemangioma PHACE syndrome indicator	The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome	Exploratory	Medical History	False	Stroke	Stroke
F1154-C58936	C58936	Drug or substance current illicit or recreational use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C58937	C58937	Drug or substance illicit or recreational use category	Category of illegal or recreational drugs or substances, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, in large amounts, or for recreational purposes	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke

Displaying 1451 - 1475 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.