CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00719 Tobacco product used type

Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

 Supplemental Behavioral History False Stroke Stroke
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

 Supplemental Family History False Stroke Stroke
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

 Supplemental Family History False Stroke Stroke
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

 Supplemental-Highly Recommended Behavioral History False Stroke Stroke
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Supplemental-Highly Recommended Glasgow Coma Scale (GCS) False Stroke Stroke
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Supplemental-Highly Recommended Glasgow Coma Scale (GCS) False Stroke Stroke
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

 Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

 Supplemental-Highly Recommended Glasgow Coma Scale (GCS) False Stroke Stroke
C01016 Glasgow Coma Scale (GCS) - total score

Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)

 Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C01016 Glasgow Coma Scale (GCS) - total score

Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)

 Supplemental-Highly Recommended Glasgow Coma Scale (GCS) False Stroke Stroke
C01500 Airway treatment type

Type of treatment or procedures the participant/subject received to support airway/ breathing

 Supplemental Vital Signs False Stroke Stroke
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

 Core Vital Signs False Stroke Stroke
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

 Core Vital Signs False Stroke Stroke
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Vital Signs False Stroke Stroke
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

 Core Vital Signs False Stroke Stroke
C01522 Height measurement

Measurement of participant's height

 Supplemental-Highly Recommended Vital Signs False Stroke Stroke
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

 Supplemental Vital Signs False Stroke Stroke
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

 Supplemental-Highly Recommended Vital Signs False Stroke Stroke
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental-Highly Recommended Vital Signs False Stroke Stroke
C01541 Weight measurement

Measurement of participant's weight

 Supplemental-Highly Recommended Vital Signs False Stroke Stroke
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

 Supplemental Vital Signs False Stroke Stroke
Displaying 51 - 75 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.