CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 451 - 475 of 16387
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C50673 Interactive Behavior Questionnaire - Something else indicator

The indicator related to the parent doing something else when the child tries to talk with them, as part of the Interactive Behavior Questionnaire

 Supplemental Conflict Behavior Questionnaire/Interaction Behavior Questionnaire False Sport-Related Concussion Persistent/Chronic
C50791 Interactive Behavior Questionnaire - Interested thing status

The status related to the parent being interested in the things that the child does, as part of the Interactive Behavior Questionnaire

 Supplemental Conflict Behavior Questionnaire/Interaction Behavior Questionnaire False Sport-Related Concussion Comprehensive
C50791 Interactive Behavior Questionnaire - Interested thing status

The status related to the parent being interested in the things that the child does, as part of the Interactive Behavior Questionnaire

 Supplemental Conflict Behavior Questionnaire/Interaction Behavior Questionnaire False Sport-Related Concussion Persistent/Chronic
C21583 Tinnitus Functional Index (TFI) - Tinnitus symptom past week indicator

The indicator related tinnitus or ringing, buzzing, tinkling, and hissing being experienced in the past week, as part of Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Persistent/Chronic
C21583 Tinnitus Functional Index (TFI) - Tinnitus symptom past week indicator

The indicator related tinnitus or ringing, buzzing, tinkling, and hissing being experienced in the past week, as part of Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Comprehensive
C21583 Tinnitus Functional Index (TFI) - Tinnitus symptom past week indicator

The indicator related tinnitus or ringing, buzzing, tinkling, and hissing being experienced in the past week, as part of Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Subacute
C21584 Tinnitus Functional Index (TFI) - Tinnitus symptom awake past week percentage value

The percentage value related tinnitus or ringing, buzzing, tinkling, and hissing being experienced while awake in the past week, as part of the Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Persistent/Chronic
C21584 Tinnitus Functional Index (TFI) - Tinnitus symptom awake past week percentage value

The percentage value related tinnitus or ringing, buzzing, tinkling, and hissing being experienced while awake in the past week, as part of the Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Comprehensive
C21584 Tinnitus Functional Index (TFI) - Tinnitus symptom awake past week percentage value

The percentage value related tinnitus or ringing, buzzing, tinkling, and hissing being experienced while awake in the past week, as part of the Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Subacute
C21586 Tinnitus Functional Index (TFI) - Tinnitus symptom awake annoyance past week percentage value

The percentage value related to annoyance at tinnitus or ringing, buzzing, tinkling, and hissing being experienced while awake in the past week, as part of the Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Subacute
C21586 Tinnitus Functional Index (TFI) - Tinnitus symptom awake annoyance past week percentage value

The percentage value related to annoyance at tinnitus or ringing, buzzing, tinkling, and hissing being experienced while awake in the past week, as part of the Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Persistent/Chronic
C21586 Tinnitus Functional Index (TFI) - Tinnitus symptom awake annoyance past week percentage value

The percentage value related to annoyance at tinnitus or ringing, buzzing, tinkling, and hissing being experienced while awake in the past week, as part of the Tinnitus Functional Index (TFI)

 Supplemental Tinnitus Functional Index (TFI) False Sport-Related Concussion Comprehensive
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Persistent/Chronic
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Subacute
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Acute
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Comprehensive
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Persistent/Chronic
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Subacute
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Acute
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Comprehensive
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Persistent/Chronic
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Subacute
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Acute
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Comprehensive
C21117 Subject name

Name of subject/participant

 Supplemental Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18 False Sport-Related Concussion Comprehensive
Displaying 451 - 475 of 16387

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.