CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2388-C17025	C17025	Migraine Disability Assessment (MIDAS) - Household work productivity half reduction past three months day count	Number of days in the last three months the participant/subject has experienced productivity reduction by half or more while doing household work because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Acute
F2388-C17026	C17026	Migraine Disability Assessment (MIDAS) - Activity missed past three months day count	Number of days in the last three months the participant/subject has missed family, social, or leisure activities because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Acute
F2388-C17028	C17028	Migraine Disability Assessment (MIDAS) - Headache past three months day count	Count the total number of days in the past three months the participant/subject had headache, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Acute
F2388-C17029	C17029	Migraine Disability Assessment (MIDAS) - Headache average pain intensity scale	Average pain scale of the headache experienced by the participant/subject, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Acute
F2388-C54381	C54381	Headache pain medication more than four days week indicator	Indicator for whether the participant/subject takes headache pain medication more than four days per week	Supplemental	Migraine History	False	Sport-Related Concussion	Acute
F2388-C54385	C54385	Migraine headache pain symptom type	The element related to the type of pain symptoms the participant/subject experiences with migraine headaches	Supplemental	Migraine History	False	Sport-Related Concussion	Acute
F2388-C54386	C54386	Migraine headache symptom type	The element related to the type of pain symptoms the participant/subject experiences with migraine headaches	Supplemental	Migraine History	False	Sport-Related Concussion	Acute
F2388-C54387	C54387	Headache prior treatment indicator	Indicator related to prior treatment for headache	Supplemental	Migraine History	False	Sport-Related Concussion	Acute
F2388-C17022	C17022	Migraine Disability Assessment (MIDAS) - School work absent past three month day count	Number of days in the last three months the participant/subject has missed work or school because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C17023	C17023	Migraine Disability Assessment (MIDAS) - School work productivity reduction past three months day count	Number of days in the last three months the participant/subject has experienced productivity reduction by half or more while at work or school because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C17024	C17024	Migraine Disability Assessment (MIDAS) - Household work not done past three months day count	Number of days in the last three months the participant/subject has not done household work because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C17025	C17025	Migraine Disability Assessment (MIDAS) - Household work productivity half reduction past three months day count	Number of days in the last three months the participant/subject has experienced productivity reduction by half or more while doing household work because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C17026	C17026	Migraine Disability Assessment (MIDAS) - Activity missed past three months day count	Number of days in the last three months the participant/subject has missed family, social, or leisure activities because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C17028	C17028	Migraine Disability Assessment (MIDAS) - Headache past three months day count	Count the total number of days in the past three months the participant/subject had headache, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C17029	C17029	Migraine Disability Assessment (MIDAS) - Headache average pain intensity scale	Average pain scale of the headache experienced by the participant/subject, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C54381	C54381	Headache pain medication more than four days week indicator	Indicator for whether the participant/subject takes headache pain medication more than four days per week	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C54385	C54385	Migraine headache pain symptom type	The element related to the type of pain symptoms the participant/subject experiences with migraine headaches	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C54386	C54386	Migraine headache symptom type	The element related to the type of pain symptoms the participant/subject experiences with migraine headaches	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C54387	C54387	Headache prior treatment indicator	Indicator related to prior treatment for headache	Supplemental	Migraine History	False	Sport-Related Concussion	Persistent/Chronic
F2388-C17022	C17022	Migraine Disability Assessment (MIDAS) - School work absent past three month day count	Number of days in the last three months the participant/subject has missed work or school because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Subacute
F2388-C17023	C17023	Migraine Disability Assessment (MIDAS) - School work productivity reduction past three months day count	Number of days in the last three months the participant/subject has experienced productivity reduction by half or more while at work or school because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Subacute
F2388-C17024	C17024	Migraine Disability Assessment (MIDAS) - Household work not done past three months day count	Number of days in the last three months the participant/subject has not done household work because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Subacute
F2388-C17025	C17025	Migraine Disability Assessment (MIDAS) - Household work productivity half reduction past three months day count	Number of days in the last three months the participant/subject has experienced productivity reduction by half or more while doing household work because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Subacute
F2388-C17026	C17026	Migraine Disability Assessment (MIDAS) - Activity missed past three months day count	Number of days in the last three months the participant/subject has missed family, social, or leisure activities because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Subacute
F2388-C17028	C17028	Migraine Disability Assessment (MIDAS) - Headache past three months day count	Count the total number of days in the past three months the participant/subject had headache, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental	Migraine History	False	Sport-Related Concussion	Subacute

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.