CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2345-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Substance Use	False	Sport-Related Concussion	Comprehensive
F2345-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Substance Use	False	Sport-Related Concussion	Acute
F2345-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Substance Use	False	Sport-Related Concussion	Acute
F2345-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Substance Use	False	Sport-Related Concussion	Persistent/Chronic
F2345-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Substance Use	False	Sport-Related Concussion	Persistent/Chronic
F2345-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Substance Use	False	Sport-Related Concussion	Subacute
F2345-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Substance Use	False	Sport-Related Concussion	Subacute
F2555-C07526	C07526	Health and Behavior Inventory (HBI) - parent current sustain attention trouble scale	How often the parent thinks the patient/subject has had trouble sustaining attention during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07527	C07527	Health and Behavior Inventory (HBI) - parent current easily distracted scale	How often the parent thinks the patient/subject has been easily distracted during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07528	C07528	Health and Behavior Inventory (HBI) - parent current concentration difficulty scale	How often the parent thinks the patient/subject has had difficulty concentrating during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07529	C07529	Health and Behavior Inventory (HBI) - parent current memory problem scale	How often the parent thinks the patient/subject has had problems remembering what he/she was told during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07530	C07530	Health and Behavior Inventory (HBI) - parent current direction difficulty scale	How often the parent thinks the patient/subject has had difficulty following directions during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07531	C07531	Health and Behavior Inventory (HBI) - parent current daydream scale	How often the parent thinks the patient/subject has tended to daydream during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07532	C07532	Health and Behavior Inventory (HBI) - parent current confusion scale	How often the parent thinks the patient/subject has gotten confused during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07533	C07533	Health and Behavior Inventory (HBI) - parent current forgetful scale	How often the parent thinks the patient/subject has been forgetful during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07534	C07534	Health and Behavior Inventory (HBI) - parent current completion difficulty scale	How often the parent thinks the patient/subject has had difficulty completing tasks during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07535	C07535	Health and Behavior Inventory (HBI) - parent current poor problem solve skill scale	How often the parent thinks the patient/subject has had poor problem-solving skills during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07536	C07536	Health and Behavior Inventory (HBI) - parent current learning problem scale	How often the parent thinks the patient/subject has had problems learning during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07537	C07537	Health and Behavior Inventory (HBI) - parent current headache frequency scale	How often the parent thinks the patient/subject has had headaches during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07538	C07538	Health and Behavior Inventory (HBI) - parent current dizziness scale	How often the parent thinks the patient/subject has felt dizzy during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07539	C07539	Health and Behavior Inventory (HBI) - parent current room spin scale	How often the parent thinks the patient/subject has had a feeling that the room is spinning during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07540	C07540	Health and Behavior Inventory (HBI) - parent current feel faint scale	How often the parent thinks the patient/subject has felt faint during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07541	C07541	Health and Behavior Inventory (HBI) - parent current blurred vision scale	How often the parent thinks the patient/subject has had blurred vision during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07542	C07542	Health and Behavior Inventory (HBI) - parent current double vision scale	How often the parent thinks the patient/subject has had double vision during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute
F2555-C07543	C07543	Health and Behavior Inventory (HBI) - parent current nausea scale	How often the parent thinks the patient/subject has experienced nausea during the past week	Supplemental-Highly Recommended	Health and Behavior Inventory (HBI) Parent Current Version	True	Sport-Related Concussion	Acute

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.